 Kate was diagnosed with NF when she was two years old. Families and friends touched by NF know the uncertainty that goes along with this diagnosis. "It becomes an emotional roller coaster each time we go for her annual MRI's and eye exam." said her mother Karen. So far Kate "only" has cafe-au-lait spots and mild Chiari Malformation (her brain stem is low in the hole of her skull). We say "only" because we know the story of NF and th... READMORE
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 Anne is a committed distance runner from Atlanta, Ga. who lost her hearing due to NF2 during her senior year of high school. Currently Anne is a student at Rochester (NY) Institute of Technology, where she entered through the National Technical Institute through the Deaf. She is a member of the RIT cross country team.
She was in first grade when the discovery of deafness in her right ear led to an MRI. This process revealed tumors on both auditory nerves and... READMORE
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 Perrie Smith lives with more than 50 birthmarks all over her body. The biggest one is on her right leg; she calls it the birthmark the size of Alabama. When Perrie was younger, she had to get a tumor removed from her upper lip and she had to endure comments from kids at school. "When I go to the pool, I see girls and boys that have only one birth mark that is barely noticeable," said Perrie. "If I am wearing shor... READMORE
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 They say, "what happens in Vegas, stays in Vegas", and I guess that is true on many levels, however, in this case, I would like to make an exception.
Last weekend, my husband, John and I traveled to Las Vegas as a belated anniversary trip. As an added bonus, we planned to support the NF Marathon Team that was running the New Las Vegas Marathon on Sunday, Dec. 4. We attended the Pasta Dinner on Saturday night, sponsored by Planet ... READMORE
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