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Kate was diagnosed with NF when she was two years old. Families and friends touched by NF know the uncertainty that goes along with this diagnosis.
"It becomes an emotional roller coaster each time we go for her annual MRI's and eye exam." said her mother Karen.
So far Kate "only" has cafe-au-lait spots and mild Chiari Malformation (her brain stem is low in the hole of her skull). We say "only" because we know the story of NF and that things can change at anytime.
"Kate is a wonderful and loving girl. She loves people and animals. She says she wants to be a vet when she grows up but she plays teacher ALL OF THE TIME. So for our beautiful girl, we have to fight!!" says Karen
Shortly after being diagnosed with NF, her mom found NF Endurance on the CTF website.
"I am so thankful that I did (find NF Endurance)!!! It is our way to fight and make a difference. We also are able to meet others affected by NF. But I think my favorite part about NFET is that Kate gets to see the positive impact that we can make. She gets a chance to see us cheering each other on, meeting new people, seeing people in our community with NF shirts, and really getting to know an NF family that is fighting together for a cure. NFET has helped Kate (and us) associate NF with something positive and that is PRICELESS!! The hardest part is the uncertainty of Neurofibromatosis. But it has taught us to really focus on what is important and to teach Kate that we need to focus more on our 'inner self" rather than our 'outer self'. Our prayer is that others will always see her for the beautiful person we know she will always be."
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