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December 2008
Celia
Running a 26-mile marathon for the six members of the Lemon Drop X team takes stamina, determination, and guts. But deciding to train for a marathon after running for less than 90 days takes a much larger vision. » |
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Updated: September 2008
Anne Shigley
Anne is a committed distance runner from Atlanta, Ga. who lost her hearing due to NF2 during her senior year of high school. Currently Anne is a student at Rochester (NY) Institute of Technology, where she entered through the National Technical Institute through the Deaf. She is a member of the RIT cross country team. » Read More |
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Posted On: April 2006
Our daughter Madison was diagnosed with Neurofibromatosis type 1, when she was 3 months old. We had never heard of NF before she was diagnosed, even though it is one of the most common genetic disorders there is. NF1 occurs in 1 in every 3,500 births, which is more then Cystic Fibrosis and Muscular Dystrophy combined. » |
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Posted On: May 2005
Carly McKay is 4 years old with NF1 and bilateral optic gliomas. She began treatment for these tumors in April of 2004 with a plan for three years on weekly chemotherapy. To date her treatment has included 3 MRI's showing her tumors have not grown and are considered stable... » |
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