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Noah LeaseNoah is a son, brother, grandson, neighbor and friend. "We’ve worried for him, prayed for him, laughed with him, read to him, held his hand and cried for him," said Brian, Noah's dad. Noah has been through countless hours of doctor visits, including 17 months of chemotherapy. A tumor continues to grow on Noah's optic nerve, which impacts the vision in his right eye... READMORE |
Erin EarleErin was diagnosed with neurofibromatosis type 2 (NF2) sixteen years ago and has dealt with many changes as a ... READMORE |
Perrie Smith![]() Perrie Smith lives with more than 50 birthmarks all over her body. The biggest one is on her right leg; she calls it the birthmark the size of Alabama. When Perrie was younger, she had to get a tumor removed from her upper lip and she had to endure comments from kids at school. "When I go to the pool, I see girls and boys that have only one birth mark that is barely noticeable," said Perrie. "If I am wearing shor... READMORE |
NF Hero![]() December 2008 Celia Running a 26-mile marathon for the six members of the Lemon Drop X team takes stamina, determination, and guts. But deciding to train for a marathon after running for less than 90 days takes a much larger vision. ยป Read More Updated: September 2008 Anne Shigley Anne is a committed distance runner from Atlanta, Ga. who lost her hearing due to NF2 during her senior year of high school. Currently Anne is a student at Rochester (NY) Institut... READMORE |