At Noah’s kindergarten graduation, when the kids were asked what they want to be when they grow up, Noah, among all the policemen, firefighters, and teachers was the lone "calculator.”

The now six-year-old Noah is excited about starting first grade this fall.  He enjoys bowling, baseball and golf.   
Noah was diagnosed with NF1 just before his first birthday, exhibiting café-au-lait spots and axillary freckling.       

“Since then, we've never noticed any other detrimental effects from the disorder,” said Frank Tyrybon, Noah’s dad.  “We visit specialists at the University of Michigan each year (which Noah enjoys because he doesn't get shots from these doctors) and they have yet to find any evidence of tumors.”

While the Tyrybon’s are fortunate that Noah has been on the mild end of the NF spectrum, they are not waiting for a chance for things to change. They are active participants with the NF Endurance Team.   “A big part of our motivation is to ensure that no other parents have to go through so many anxious months of uncertainty and unanswered questions like we did,” said Frank.