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Erin EarleErin was diagnosed with neurofibromatosis type 2 (NF2) sixteen years ago and has dealt with many changes as a ... READMORE |
Noah Tyrybon![]() At Noah’s kindergarten graduation, when the kids were asked what they want to be when they grow up, Noah, among all the policemen, firefighters, and teachers was the lone "calculator.” The now six-year-old Noah is excited about starting first grade this fall. He enjoys bowling, baseball and golf. Noah was diagnosed with NF1 just before his first birthday, exhibiting café-au-lait spots and axillary freckling. “Since then, we've never noticed any other detrimental effects from the disorder,” said Frank Tyrybon, Noah’s dad. “We visi... READMORE |
Candice Patterson![]() Candice Patterson has endured 19 surgeries because of NF which has caused tumors on her optic nerves and sinuses. In addition, she has had facial reconstruction and has been temporarily blind. Six weeks after her nineteenth surgery she finished the Gasparilla Distance Classic by walking the 5K with the support of friends and family. She needed a goal. She needed something to get her out of bed and begin her recovery. The day after waking from surgery, she walked around the nur... READMORE |
Perrie Smith![]() Perrie Smith lives with more than 50 birthmarks all over her body. The biggest one is on her right leg; she calls it the birthmark the size of Alabama. When Perrie was younger, she had to get a tumor removed from her upper lip and she had to endure comments from kids at school. "When I go to the pool, I see girls and boys that have only one birth mark that is barely noticeable," said Perrie. "If I am wearing shor... READMORE |