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Gigi will do just about anything for a bag of Skittles. She loves sugary treats. She likes things that are pink and she enjoys playing in dress up clothes. But Gigi's diagnosis of Neurofibromatosis (NF1) brings many challenges to the life of a 7-year-old. Gigi has endured the growing number of café-au-lait spots, macules and two broken tibias. She sports bifocals, pink of course, for estropia and cross-eyedness. She has iris Lisch nodules, small benign tumors, on her eye. An optic glioma in her left eye is further complicating matters by deteriorating her vision.More NFE Heroes
Candice Patterson Candice Patterson has endured 19 surgeries because of NF which has caused tumors on her optic nerves and sinuses. In addition, she has had facial reconstruction and has been temporarily blind. Six weeks after her nineteenth surgery she finished the Gasparilla Distance Classic by walking the 5K with the support of friends and family. She needed a goal. She needed something to get her out of bed and begin her recovery. The day after waking from surgery, she walked around the nur... READMORE |
Dallas Henderson Dallas was born at East Alabama Medical center in Opelika, Ala., and appeared to be a healthy baby boy. Over the first year of life, Dallas thrived and grew, until one day while drinking from his bottle he began to project vomit. His mom, Sharon, could tell he had ingested some of the vomit in his lungs. He had difficulty breathing. His breaths were raspy and difficult. Sharon and her husband, Garrett, took Dallas to the doctor. After various tests, the doc... READMORE |
Noah Lease Noah is a son, brother, grandson, neighbor and friend. "We’ve worried for him, prayed for him, laughed with him, read to him, held his hand and cried for him," said Brian, Noah's dad. Noah has been through countless hours of doctor visits, including 17 months of chemotherapy. A tumor continues to grow on Noah's optic nerve, which impacts the vision in his right eye... READMORE |
Noah Tyrybon At Noah’s kindergarten graduation, when the kids were asked what they want to be when they grow up, Noah, among all the policemen, firefighters, and teachers was the lone "calculator.” The now six-year-old Noah is excited about starting first grade this fall. He enjoys bowling, baseball and golf. Noah was diagnosed with NF1 just before his first birthday, exhibiting café-au-lait spots and axillary freckling. “Since then, we've never noticed any other detrimental effects from the disorder,” said Frank Tyrybon, Noah’s dad. “We visi... READMORE |