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RACING FOR A REASON. NF Heroes — children and adults from around the country who every day live with the challenges of NF — are the heart of the Racing4Research program. Our Heroes, along with their family and friends, host fundraising events throughout the year then join the team for an exciting weekend of racing and support. The CTF car features the names of every NF Hero and those in attendance sign the car during what has become an annual R4R team tradition. Enjoy a once-in-a-lifetime, empowering race weekend with the Racing4Research team - become a hero - an NF Hero! JOIN TODAY. |
R4R NF Heroes
FL - Chris Burrell Hi my name is Chris Burrell. I am 23 years old and I was diagnosed with NF. What is NF? NF stands for Neurofibromatosis which causes tumors to grow anywhere on or in the body. There are no treatmen... MORE... |
FL - Casey Gibbons Our little girl Casey was diagnosed last year with NF1 at the age of one and a half years old. Since then we have been to many different doctors, and she has been through numorous amounts of scans and... MORE... |
CA - Brenda McCool No one could have imagined that anything was wrong when Brenda was born. She was such a beautiful baby. She grew and grew but the pediatrician thought something was wrong with her leg at the time of h... MORE... |
CA - Dakota Anderson Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. She was officially diagnosed at 9 months old by a blood test. She is now 5 years old and in Kindergar... MORE... |
CO - Sawyer Devlin Ray Our little man, Sawyer, was officially diagnosed with NF1 when he was 8 months old, though we had been pretty sure of the diagnosis since he was 3 months old. When he was born he was in the NICU (for ... MORE... |
CA - Andrew Vigil Hi, my name is Andrew and I was diagnosed with NF1 when I was 5 years old. I am now 10 years old and NF has affected me in many ways. I have tumors on my optic nerves, brain stem and now on my upp... MORE... |
CA - Rob Schafer Thank you for choosing to visit my site as many of the other NF heros' stories are quite inspiring. I started this long journey with NF when I was 7 years old and I am now 40. I have lived thro... MORE... |
CA - Raymond Thomas Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech therapist and developed a few tumors (they have not caused complications). We have been very luck... MORE... |
CA - Madison Branaugh Madison is 2 years old and has NF1 due to a random genetic mutation that hapened during conception. We recently found out that she has a pretty severe plexiform. Of course we always hear that we will ... MORE... |
CA - Brandon Tibbets Brandon Tibbets was born with NF 1. He has a bone deformity in his leg due to his NF. His bone fractured on its own when he started putting weight on his leg. The bone didn't heal on its own so surger... MORE... |
CA - Denelle Pritchard My name is Denelle Pritchard and I am 45 years old. I was diagnosed with NF2 at the age of 28. Since that time I have had 3 brain surgeries. The most common problem people with NF2 have is deafness an... MORE... |
AZ - Kyle Oden Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thought he had a lazy eye. But when the doctor dilated and looked in his eye he noticed swelling, pressu... MORE... |
FL - Dylan Brain On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (two at that time) Dylan was diagnosed with neurofibromatosis. Dylan has tumors on his brainstem and sp... MORE... |
NY - Andrew Snyder I had never heard of neurofibromatosis until my sweet grandson, baby Andrew, was diagnosed last year with NF1. Two family members who are experienced nurses had never heard of this either. So, it w... MORE... |
GA - Jocelyn Cantrell This website is in honor of my beautiful daughter, Jocelyn. At the age of four she was diagnosed with neurofibromatosis. NF causes tumors to grow on your nerve endings. It can cause deafness, blindne... MORE... |
GA - Katherine Thompson I want to thank everyone for visiting this site to become more educated regarding neurofibromatosis (NF). Just over the past year or so, I have felt led to become involved in helping bring awarenes... MORE... |
VA - Cameron Arnette Cameron is a happy little 5-year-old boy. At such a young age, he is already a car enthusiast. He has attended the Daytona 24 Hours Rolex race three times, and is very excited about seeing "his&q... MORE... |
GA - Jack Burke Jack is a kind, energetic, inquisitive, adorable five year old who also has NF. He is a fantastic big brother, and loves playing with Luke, his cousins and his friends. He makes his parents so proud e... MORE... |
GA - Delaney Watts I still remember the day we found out Delaney has NF - 1. I think it is one of those memories you wish you could forget. Unfortunately, that won't happen, so I face each day with the hope that Delane... MORE... |
GA - Katelyn Watkins My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call me. They are Kate-Kate, Smiley and Snickers. My parents are divorced and I live with my father Rand... MORE... |
FL - Lilly Ann Brooks Thank you for coming to Lilly Ann’s NF Hero web page! We posted this for one reason- to raise money for a cure and treatment to Neurofibromatosis. We spent the first 18 months of Lilly An... MORE... |
GA - Jocelyn Driscoll Hi my name is Jocelyn Driscoll. I was diagnosed with Neurofibromatosis Type 1 at age 3. Neurofibromatosis is a genetic disease that is a spontaneous mutation or it is passed down by a parent. It cause... MORE... |
VA - Evan Perdew Evan was diagnosed with NF when he was 3 months old. In 2009, doctors found a large plexiform neurofibroma in his right shoulder that cannot be removed. It is too intertwined with the nerves in his s... MORE... |
NE - John Schafer Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anytime. It affects 1 in 3,000 births and can show up in any family at any time. Every person with NF li... MORE... |
IN - Jesse Markland Jesse is 5 years old and has neurofibromatosis (NF1). This means he has multiple café-au-lait spots, many small tumors, at least 1 more complex tumor, a brain tumor, low muscle tone, nerve p... MORE... |
IL - Cole Rutter My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots all over my body. They looked just like birth marks, so my parents were not too worried. Bu... MORE... |
IL - Rosie Colucci Rosie is just one of Illinois’ NF Heroes...but she is the reason our family and so many who know her are showing their support by making donations and raising funds by hosting fundraisers in her hon... MORE... |
IL - Tyler Neppl Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumor growth since he was 3 months old. As you can see in the picture one tumor affects his sight in his... MORE... |
NE - Skylar Folkers Skylar was diagnosed with neurofibromatosis type 1 at the age of five, along with her NF1, she has been diagnosed with ADHD, mood disorder, oppositional defiant disorder, and borderline intellectual d... MORE... |
NE - Jena Lucas When Jena was born we noticed several birth marks. At the time there was no reliable genetic testing to confirm or deny a diagnosis of neurofibromatosis. Doctors dismissed my concerns as being a paran... MORE... |
AL - Mariska Wallis Hi my name is Kristy and I'm raising funds for NF. The reason being my 3 year old god-daughter was diagnosed with NF2 about three months ago and up until then I had never heard of NF. They f... MORE... |
AL - James Gerrell My son James was first diagnosed with NF1 at the age of 4. He has lived with this for the past 24 years. He has had several surgeries to remove the tumors and they keep coming back. He has had two tum... MORE... |
TX - Kaleb Grigg My name Is Kaleb and I was diagnosed with NF1 at the early age of 10 months old. When I was born my parents noticed a few spots on my body but assumed they were just birth marks. They also noticed ... MORE... |
OR - Zachary Odegard I am 15 years old and I was diagnosed with NF 1 when I was 3 years old. Neurofibromatosis is a genetic disorder that affects the central nervous system causing tumors to grow on or in the body. NF... MORE... |
MA - Celia LaBarbera Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with life! Her family's pride and joy. No one would fathom what lies within her... what she battles dail... MORE... |
NY - Bailey Gribben Hi I'm Bailey - I'm 13 years old and I have NeuroFibromatosis 2 (NF2) .This is a genetic neurological disorder that causes tumors to grow on the nerves of my brain & spinal cord .I am a re... MORE... |
NY - Kevin Martin My name is Kevin Martin. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots on my body. They looked just like birth marks, so my parents were not too worried. But two y... MORE... |
NY - Brianna Worden Hello, and thank you for visiting our page!! Brianna is once again on a mission to help CTF Fuel the Cure for Neurofibromatosis!! Please help us reach our goal!! To see the top 5 reasons to donate ... MORE... |
DE - Isabelle Moulsdale We have two beautiful children, Tristan (5) and Isabelle (3). About 6 months after Isabelle was born, we discovered that she was born with the most common neurological disorder affecting a single gen... MORE... |
NC - Noah Roberts Noah was only five when a CT scan, after an accident, revealed that he had two brain tumors. Noah had surgery within several weeks to successfully remove the two tumors. It was not until several month... MORE... |
MI - Josiah Abbott Josiah A. MORE... |
MI - Izzy Mick Izzy has Neurofibromatosis. This disorder can result in tumors to develop anywhere in her body, at any time. It affects 1 in every 3,000 people and is more prevalent than Cystic Fibrosis, here... MORE... |
WI - Owen Polak Owen has NF. NF has has challenged Owen every day since he was 6 months old. Owen is currently 9 years old. For eight years, Owen (and his mom and dad) have been riding a roller coaster of ups and d... MORE... |
MI - Nicolas Cohoon When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were multiplying. At Nic's 4 month pediatrician appointment was the first time I heard the words Cafe' A... MORE... |
OH - Seth Abram Hello! Seth has struggled with painful tumors in his foot for most of his life. We didn't know the tumors were caused by NF until he was 7 years old. Since then, Seth has tried to stay positive an... MORE... |
OH - Bryce Gossard Wow, what a great day we had on May 23, 2010 at the Family Fun Day and Car Show on behalf of Bryce in Kenton, Ohio. There was over 300 people with 70 classic and hot rod cars with over 20 trophies wit... MORE... |
OH - Amie PetrasI was first diagnosed with NF2 when I was in high school. At the time, I was seventeen years old and not too many doctors were aware of neurofibromatosis. Since my diagnosis, I have had two cyberknife... MORE... |
CA - Blake Robinson For the first year of his life, everything seemed normal. Blake was born at term via c-section, only because he was a large, healthy baby. Being the first child in the family, he has been spoiled from... MORE... |
NJ - Julionna Lawrence My daughter Julionna has NF1. Neurofibromatosis is a tumor disorder that children can be born with. Julionna was diagnosed at the age of 18 months by a pediatric neurologist. She has been seen by a... MORE... |
PA - Michael Zazula Welcome to Michael's Racing for Research page. The past year has been full of challenges, a test of faith and fortitude but most of all a year of HOPE! With the energy and ambition that so many pe... MORE... |
NY - Kiara Alberigo At around the age of 3 years old, Kiara was diagnosed with NF. At first we were in denial, but we took the time to understand what we were dealing with. Through many doctors and personal research, we ... MORE... |
NY - Jonathon White My name is Jonathon White, I am 12 years old and I have neurofibromatosis (NF). I live in Staten Island, New York with my family, I am the youngest of three boys and I am the only one in my f... MORE... |
VA - Jamie Yowell My name is Jamie and I am 14 years old. I have NF 1. I have a large neurofibroma wrapped around my airway that is compressing in my airway. I have a trach and have to sleep on a ventilator. I have ... MORE... |
NY - Julia Perfetti Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny girl, about to turn 4 years old. The facts of NF- its progressive, unpredictabl... MORE... |
UT - Wyatt Enman My name is Wyatt and I have a disease called neurofibromatosis (NF1). This is a disease that effects the central nervous system. This causes me to have cafe-au-lait spots all over my body, plexifor... MORE... |
NV - Cailin Devine Developed by the Children’s Tumor Foundation, Racing4Research raises money to benefit NF research through corporate sponsorship, personal donations, and individual fundraising by our NF Heroe... MORE... |
UT - Lynne Stockman My name is Lynne Stockman from Salt Lake City, Utah and I am 49 years old and was born with NF1. I am the only member of my family who has neurofibromatosis. I am currently serving as the Utah CTF Cha... MORE... |
NV - Taylor & Kirsten Halbert Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They were diagnosed when they were 8 months old from a tumor that was discovered on Taylor's back. Neurofib... MORE... |
SD - Auston Ehrmantraut Auston Ehrmantraut was diagnosed with NF1 shortly after birth. Since he was a baby, he's been doctoring at Mayo Clinic Rochester, MN. Auston is a bright, funny, fun-loving kid. He has so much pote... MORE... |
UT - Kala Schvaneveldt My name is Kala Schvaneveldt. I am 16 years old, and when I was 7 years old I was diagnosed with neurofibromatosis type one. I have a tumor on my optic nerve and many cafe-au-lait spots and some plexi... MORE... |
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alphabetical listing (state)
- Josiah Abbott (MI)
- Seth Abram (OH)
- Kiara Alberigo (NY)
- Dakota Anderson (CA)
- Cameron Arnette (VA)
- Bob Beck (CA)
- Nicholas Biering (SC)
- Christopher Birchfield (GA)
- Dylan Brain (FL)
- Madison Branaugh (CA)
- Ingrid Parker (GA)
- Lilly Ann Brooks (FL)
- Jack Burke (GA)
- Shanna Byrd (SC)
- Chris Burrell (FL)
- Jocelyn Cantrell (GA)
- Nicolas Cohoon (MI)
- Rosie Colucci (IL)
- Xavier Compo (WA)
- Antonio Danino (NY)
- Cailin Devine (NV)
- Jocelyn Driscoll (GA)
- Jacqueline Dunlap (MN)
- Carmina Edmunds (TX)
- Auston Ehrmantraut (SD)
- Wyatt Enman (UT)
- Skylar Folkers (NE)
- James Gerrell (AL)
- Casey Gibbons (FL)
- Bryce Gossard (OH)
- Bailey Gribben (NY)
- Kaleb Grigg (TX)
- Taylor & Kirsten Halbert (NV)
- Gabriel Helpingstine (IN)
- Terin Hibl (MT)
- Kathlyn Huerta (NM)
- Celia LaBarbera (MA)
- Julionna Lawrence (NJ)
- Mason Lain Lockmiller (MO)
- Jena Lucas (NE)
- Jesse Markland (IN)
- Kevin Martin (NY)
- Brenda McCool (CA)
- Izzy Mick (MI)
- Isabelle Moulsdale (DE)
- Jayde Rose Nason (ME)
- Tyler Neppl (IL)
- Kyle Oden (AZ)
- Leo Ogle (AK)
- Zachary Odegard (OR)
- Evan Perdew (VA)
- Julia Perfetti (NY)
- Amie Petras (OH)
- Owen Polak (WI)
- Denelle Pritchard (CA)
- Sawyer Devlin Ray (CO)
- Kendall Reeve (IN)
- Nicole Riley (MO)
- Noah Roberts (NC)
- Blake Robinson (CA)
- Cole Rutter (IL)
- John Schafer (NE)
- Rob Schafer (CA)
- Kala Schvaneveldt (UT)
- Laura Smith (OR)
- Andrew Snyder (NY)
- Jesse Sorman (NY)
- Lynne Stockman (UT)
- Gracie Stoll (NY)
- Raymond Thomas (CA)
- Dylan Thompson (MA)
- Brandon Tibbets (CA)
- Katherine Thompson (GA)
- Andrew Vigil (CA)
- Mariska Wallis (AL)
- Katelyn Watkins (GA)
- Delaney Watts (GA)
- Jonathon White (NY)
- Tera Willhelm (TX)
- Brianna Worden (NY)
- Ethan Wray (NC)
- Jamie Yowell (VA)
- Michael Zazula (PA)
