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Resources to Shine a Light on NF in 2016

on Monday, 01 February 2016. Posted in Blog

Shine a Light Social GraphicShine a Light on NF is a grassroots initiative that brings NF awareness into the community by lighting up buildings, bridges and monuments in blue and green.

In 2015, you went into your community and secured 40 landmarks across the country and around the world! Places like Niagara Falls, the Seattle Great Wheel and the Zakim Bridge all glowed blue and green on May 17th!

For NF Awareness Month 2016, we've created tools to make outreach even easier. Download the flyer and the graphic, and shine a light on NF in your community!

NF Endurance Bestows Kristina Rath with inaugural Heart of a Champion Award

on Friday, 29 January 2016. Posted in Blog

Kristina and Jane RathKristina Rath, longtime NF Endurance participant and CTF advocate, has been awarded the first annual Garrett Baumann Heart of a Champion Award. Each year this award will be given to a person who exhibits similar qualities of Garrett Baumann, a young man with NF2 who is the heart of “Team Garrett.” Recipients must possess a determined spirit; persevere through challenges; meet adversity with an open heart; have a sense of humor; and respect fellow teammates.

Gillian Anderson auctions off X-Files memorabilia to benefit NF research

on Wednesday, 27 January 2016. Posted in Blog

Gillian Auction FlatAre you an X-Files fan? Own a part of television history! 

You have a chance to bid on memorabilia from Gillian Anderson's personal collection in an exclusive eBay auction that started January 24th! Don't miss this opportunity to own an original piece of X-Files history! Proceeds will benefit the NF Network.

2016 NF Conference abstract submission deadline

on Monday, 25 January 2016. Posted in Foundation News & Events, Blog

NF Conference 2016 Save the Date Graphic2016 NF Conference abstract submission deadline March 28, 2016
Registration to open soon

NF Mom Writes Book About Her NF Hero

on Friday, 22 January 2016. Posted in Blog

Zachary Bartz smLike so many NF families, life was nearly perfect for Carol Ann, her husband, Nathan, and their family, until one day she began to suspect something wasn’t right with their youngest son, Zachary.

In 2015, Carol Ann wrote a book called The Believer, which shares the true story of the life journey of her son, an extraordinary child whose uncommon strength and spirit touched the lives of everyone who ultimately contributed to his fight for life.

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