Blog

Children’s Tumor Foundation Receives 4-Star Rating from Charity Navigator 6th Year in a Row

on Thursday, 21 May 2015. Posted in Foundation News & Events, Blog

4StarSquareThe Children's Tumor Foundation is excited to announce that it has once again been honored with a 4-star rating from Charity Navigator, America's largest and most-utilized independent evaluator of philanthropies.

This is the 6th year in a row that Charity Navigator has given the Foundation its coveted 4-star rating for sound fiscal management and commitment to accountability and transparency.

Receive an Amazon gift card when you participate in the NF Registry

on Thursday, 14 May 2015. Posted in Blog

During May, Children's Tumor Foundation (CTF) will give away 200 Amazon gift cards to thank those who help NF research by participating in the NF Registry. Both existing and new registrants may participate.

The Registry is a secure database that stores information about an individual's NF history and symptons. This information is completely confidential and is used only for research. It is open to people living with any form of NF, including NF1, NF2 and schwannomatosis. 

Generous Donors Establish Matching Gift Funds for All 3 Types of NF

on Tuesday, 12 May 2015. Posted in Foundation News & Events, Blog

NEW YORK – May 13, 2015 – The Children’s Tumor Foundation is pleased to announce that, thanks to the generous gifts of three donors, every dollar donated during the month of May to support our efforts to end neurofibromatosis will be matched dollar-for-dollar. Neurofibromatosis, or NF, is a genetic disorder that can cause tumors to grow on nerves throughout body. NF manifests in three distinct disorders: NF1, NF2, and schwannomatosis. It affects one in 3,000 people of all populations; there is no effective treatment or cure.

“These Matching Gift Programs established by longtime supporters of the Foundation, Jim Bob and Laurée Moffett, for NF1, Carol Harrison, for NF2, and Richard and Erica Horvitz, for schwannomatosis, are energizing the entire NF community as we come together to fight NF on all three fronts,” said Annette Bakker, PhD, Children’s Tumor Foundation President and Chief Scientific Officer.

Annette Bakker part of international team of scientists published in Nucleic Acids Research

on Tuesday, 05 May 2015. Posted in Foundation News & Events, Blog

Pg 1In the last issue of NF News, we wrote about the NF Finder and how NF patients are benefiting from drugs developed for other diseases.

We’re excited to share that, just this week, President and Chief Scientific Officer Annette Bakker, as a member of an international team of researchers, published an article in Nucleic Acids Research about drug repositioning and the NFFinder. NFFinder is a tool that allows researchers to compare genetic profiles of different NF tumor and tissue types against a database of genetic profiles from many other types of diseases and cancers.

Buildings, Bridges and Monuments Around the World Shine a Light on NF for Awareness Month

on Wednesday, 29 April 2015. Posted in Foundation News & Events, Blog

Shine A Light FB Share full list UPDATEDNEW YORK – April 29, 2015 – The Children’s Tumor Foundation is pleased to announce that, in honor of May NF Awareness Month, buildings, bridges and monuments across the globe will light up blue and green, the official colors of neurofibromatosis (NF).

Neurofibromatosis is a genetic disorder that can cause tumors to grow on nerves throughout the body. It affects one in 3,000 people of all populations; there is no effective treatment or cure. Shine a Light on NF is one part of the Children’s Tumor Foundation’s month-long awareness campaign that includes online and offline events designed to educate the community about this under-recognized genetic disorder.

[12 3 4 5  >>  

Contact Us

Children's Tumor Foundation
120 Wall Street, 16th Floor
New York, NY 10005-3904

Phone: 212-344-6633

info@ctf.org