Last week, the NF community gathered in Scottsdale, AZ for a long weekend of leadership training, research updates, and patient and family support. We asked Nicole Steinert to reflect on attending her first Leadership Summit and NF Forum.
When I signed up to attend the NF Forum, I had no idea the impact it would have on me. I was asked to attend as a Council Member; I was honored for the invitation, but I was hesitant to go. It would mean leaving my family for five days. I've never left my kids for five hours, let alone five days!
With some creativity and a lot of help from my mom, I was able to make it happen. And man, am I glad that I did! From the start of the Forum, I felt welcome. It was such a warm, inviting environment.
We jumped into event planning and networking. We spent the day collaborating and learning about the resources available to us and what other chapters across the U.S. are doing to raise money and awareness.