Raising Awareness for Genetic Disorder that affects 1 in 3,000
NEW YORK – May 2, 2016 – The Children’s Tumor Foundation announced its annual month-long campaign to raise awareness about neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body. It affects 1 in 3,000 people of all populations; there is currently no treatment or cure.
Through numerous community events held during the month of May, as well as online activities, Neurofibromatosis Awareness Month and “I Know a Fighter” aim to draw attention to the inspirational and remarkable stories of those living with NF, who are fighters in every sense of the word. A new part of the initiative this year will be “Born a Fighter,” a component that will empower those living with NF to acknowledge their own strength and resilience.