NF Awareness Month Begins

May 1, 2017

, Nationwide

Through numerous community events held during the month of May, as well as online activities, NF Awareness Month aims to draw attention to the inspirational and remarkable stories of those living with NF and the critical need for research. The campaign takes place across multiple platforms and includes a heavy social media presence centered on those fighting NF and those who support them in their fight.

A key component to this year’s campaign is the new photo series by award-winning photojournalist Craig Warga, an NF parent who set out to inspire his young son, who lives with NF1.  This collection is about people living with neurofibromatosis - not just living, but succeeding and thriving. The NF story can be one full of hurdles - diagnosis, symptoms, doctor appointments, MRI scans, surgeries and/or clinical trials. With this project, we’re telling a side of the NF story that isn’t often told: the passion that those living with NF bring to their daily lives, to their work, their goals, their relationships, the things they want to get out of life, with or without NF. This collection launches online at ctf.org/thisisnf with portraits and profiles of 11 adults living with NF.

There are many ways to get involved in NF Awareness Month:

  • Shine a Light on NF Over 100 buildings, bridges, landmarks and monuments (including Niagara Falls, the John F. Kennedy Airport Air Traffic Control Tower, and the Trafalgar Square Fountain) around the world will light up blue and green. This year, CTF aligned efforts with the Neuro Foundation (a national NF charity in the U.K.), the Tumour Foundation of British Columbia, and NF Kinder (Vienna, Austria) among others, to extend the reach globally. Visit ctf.org/nfawareness for a complete list of participating locations, and tools to use to approach landmarks in your community.  
     
  • Cities and states around the country have proclaimed May as NF Awareness Month or May 17 as World NF Awareness Month. Visit ctf.org/nfawareness for a complete list of participating cities and states.
     
  • Enter the 2017 Children’s Tumor Foundation NF Awareness Month photo contest and show us Where in the world do you end NF! Raising awareness for NF can happen anytime, anywhere. Whether you’re on vacation, at work, at school or just hanging out in your front yard, we know you’re on call 24/7/365, telling others what NF is, how it impacts your life and the significance of funding research. Submit a photograph to media@ctf.org with any item that shows the CTF or End NF logo.
     
  • Purchase exclusive merchandise with “I Know a Fighter,” “Born a Fighter,” and End NF imagery, and support the efforts of the Children’s Tumor Foundation.
     
  • Visit the Children’s Tumor Foundation events calendar for a complete schedule of NF Walks, NF Endurance events, and local community fundraisers taking place all across the country to raise money to fund NF research and recognize the positive spirit and resolve of local NF Heroes and their families.
     
  • Follow the Children’s Tumor Foundation (@childrenstumor) on Facebook, Twitter, Instagram and Youtube for more stories about how the community is working to End NF.
     

To make a donation in honor of NF Awareness Month, visit ctf.org/donate.


Contact:
media@ctf.org