May 19, 2018
What a Sweet Way to Fund a Cure for Neurofibromatosis
Why do we need a cure?
Because this tumor causing genetic disorder affects 1 in 3,000 people including a little girl named Sophie. Her big brothers wanted to find a way to raise funds and awareness for vital research being done by the Children’s Tumor Foundation. They found that selling sweet tea for their baby sister was a perfect way to do just that. They concocted their own secret recipe and set up a table in our front yard. Selling Sweet Tea for Sophie is one of their favorite things to do. And we love that they are learning to give of themselves to charity, especially one that we hold near and dear to our hearts.
When can I host a stand?
You can host a Sweet Tea for Sophie stand anytime but once a year we will try to set a World Record for the Most Sweet Tea Stands. The next nationwide day of Sweet Tea for Sophie stands to kick off NF Awareness Month is on May 19th!
What if I can’t host a stand?
If you can’t host a stand, you can still #SweetenThePot. Sweetening the Pot is a way for you or your business to pledge to match the proceeds of a Sweet Tea for Sophie stand in a specific zip code.
Why Sweet Tea for Sophie?
The idea was started because this kid sister named Sophie, has NF and her brothers wanted to do something about it. The truth of the matter is, that we know so many amazing NF heroes, some who are profoundly affected by their neurofibromatosis. Every bit of this effort is for each person dealing with the effects of NF in their lives. It’s Sweet Tea for Sophie, but it’s really just a sweet and fun way to try to fund a CURE for everyone with Neurofibromatosis.
This event has been organized by an NF community volunteer to benefit the Children's Tumor Foundation.