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  • NF2
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  • General Discussions
    Schwannomatosis is a form of neurofibromatosis that causes tumors called schwannomas to grow on the outer covering (sheath) of the nerve. Individuals with schwannomas do not develop the auditory tumors associated with NF2. It is unclear how many people suffer from this disorder but some reports indicate that schwannomatosis may occur in approximately 1 in 40,000 births similar to NF2. Pain is usually the first symptom of schwannomatosis.
    Moderator: Vandaar
    78 Topics
    402 Posts
    Last post by Yaw View the latest post
    Tue Aug 31, 2010 7:04 pm
  • Pen Pals Wanted

    Moderator: Vandaar
    1003 Topics
    3821 Posts
    Last post by mpb View the latest post
    Wed Aug 25, 2010 5:12 pm
  • NF & Learning Disabilities
    About half of the NF 1 population has Learning Disabilities, and for many of the children and teens with the disorder, learning disabilities represent the most difficult burden. BB users are encouraged to discuss here their experiences, coping strategies, interactions with schools and medical professionals.
    Moderator: Vandaar
    112 Topics
    893 Posts
    Last post by aussie nf mum View the latest post
    Mon Aug 16, 2010 1:34 am
  • NF and Women's Health
    In response to the many postings dealing with the issues that women face living with NF (e.g., NF and pregnancy, NF and hormone replacement therapy, the effect of birth control pills on NF) we have created this new forum for our users to discuss these and any other issues related to women's issues and NF.
    Moderator: Vandaar
    184 Topics
    1321 Posts
    Last post by Guest View the latest post
    Wed Oct 21, 2009 9:45 am
  • Coping with NF
    Living with NF can be challenging and many of our BB users have offered their support, guidance and advice on various ways to cope with the emotional, spiritual and physical burdens that NF can sometimes cause.
    Moderator: Vandaar
    215 Topics
    1675 Posts
    Last post by wynne View the latest post
    Sun Jun 20, 2010 7:21 am
  • Memorials
    This section the The NF Website's Bulletin Board gives members the opportunity to post messages in memory of family members, friends and loved ones.
    Moderator: NNFF
    69 Topics
    328 Posts
    Last post by spyrogirlkim View the latest post
    Tue Aug 10, 2010 9:59 pm

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