It is currently Wed May 23, 2012 6:07 pm
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- Neurofibromatosis
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General Discussions
Moderator: Vandaar - 10112 Topics
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Last post by seesnow
Wed May 23, 2012 3:48 pm
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General Discussions
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NF and Children
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Last post by legend
Fri May 18, 2012 8:10 pm
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NF and Children
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Personal Stories
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Last post by HillaryS1201
Sat Apr 28, 2012 3:05 am
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Personal Stories
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Kitchen Table (Non NF Topics)
Moderator: Vandaar - 8893 Topics
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Last post by HillaryS1201
Sat Apr 28, 2012 3:06 am
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Kitchen Table (Non NF Topics)
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- NF2
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General Discussions
Moderator: Vandaar - 368 Topics
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Last post by HillaryS1201
Sat Apr 28, 2012 3:09 am
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General Discussions
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Auditory Brainstem Implants
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Last post by Dreamer
Fri Jan 28, 2011 5:00 am
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Auditory Brainstem Implants
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Personal Stories
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Last post by rere
Mon Feb 13, 2012 4:50 pm
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Personal Stories
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- Schwannomatosis
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General Discussions
Schwannomatosis is a form of neurofibromatosis that causes tumors called schwannomas to grow on the outer covering (sheath) of the nerve. Individuals with schwannomas do not develop the auditory tumors associated with NF2. It is unclear how many people suffer from this disorder but some reports indicate that schwannomatosis may occur in approximately 1 in 40,000 births similar to NF2. Pain is usually the first symptom of schwannomatosis.
Moderator: Vandaar - 79 Topics
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Last post by HillaryS1201
Sat Apr 28, 2012 3:09 am
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General Discussions
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- ADDITIONAL FORUMS
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Pen Pals Wanted
Moderator: Vandaar - 1006 Topics
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Last post by bigballofyarn
Mon Feb 06, 2012 10:23 pm
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Pen Pals Wanted
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NF & Learning Disabilities
About half of the NF 1 population has Learning Disabilities, and for many of the children and teens with the disorder, learning disabilities represent the most difficult burden. BB users are encouraged to discuss here their experiences, coping strategies, interactions with schools and medical professionals.
Moderator: Vandaar - 112 Topics
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Last post by mr_marc
Thu Mar 17, 2011 6:25 pm
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NF & Learning Disabilities
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NF and Women's Health
In response to the many postings dealing with the issues that women face living with NF (e.g., NF and pregnancy, NF and hormone replacement therapy, the effect of birth control pills on NF) we have created this new forum for our users to discuss these and any other issues related to women's issues and NF.
Moderator: Vandaar - 185 Topics
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Last post by tennesseekidd45
Mon May 14, 2012 11:33 am
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NF and Women's Health
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Coping with NF
Living with NF can be challenging and many of our BB users have offered their support, guidance and advice on various ways to cope with the emotional, spiritual and physical burdens that NF can sometimes cause.
Moderator: Vandaar - 219 Topics
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Last post by HillaryS1201
Sat Apr 28, 2012 3:08 am
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Coping with NF
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Memorials
This section the The NF Website's Bulletin Board gives members the opportunity to post messages in memory of family members, friends and loved ones.
Moderator: NNFF - 70 Topics
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Last post by HillaryS1201
Sat Apr 28, 2012 3:10 am
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Memorials
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