</font><blockquote><font size="1" face="Verdana, Helvetica, sans-serif">quote:</font><hr /><font size="2" face="Verdana, Helvetica, sans-serif">Originally posted by ElaineAllenRob:
<strong>Hello, my name is Elaine. I have a two and a half year old named Trey who has NF1. In addition to have a plexineurofoma on his right side that starts at his neck and goes all the way down his right side, they recently discovered a tumor has formed around his carotid artery. This tumor is inoperable because of its location and they don't know what they are going to do. Chemo is not looking hopeful and the only form that may stop the tumor from growing is still in the testing phase and he is too young for study. My question is, is there anyone out there that has had to deal with a tumor in this area and did they receive any type of treatment for it. Please reply.</strong></font><hr /></blockquote><font size="2" face="Verdana, Helvetica, sans-serif">I am not sure if this would be an option.
My daughter Cheyenne's carotid arteries are all but closed. IF the tumor starts to inhibit blood flow, maybe they can preform the same surgery they did on Chey. They basically revascualized her brain. It was a noneventful surgery.