Latest Research on Spinal NF Tumors

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Latest Research on Spinal NF Tumors

Postby Chi Chi » Mon Apr 10, 2006 11:45 am

UCSF surgeons are using a novel technique to remove tumors from the cervical region of the spine that were previously thought "inoperable."

Called a lateral paramedian transpedicular approach, the technique uses advances in spinal instrumentation and reconstructive strategies to provide a direct approach to the removal of cervical spinal tumors with minimal, or no, neural manipulation.

The procedure is reported in the November issue of Operative Neurosurgery. UCSF is the only medical institution in the United States where patients can undergo this surgery.

Developed by neurosurgeon Christopher Ames, MD, co-director of neurospinal disorders and director of the Spinal Biomechanics and Spinal Neuronavigation Laboratory at UCSF Medical Center, the surgery uses standard and innovative devices to first remove and then reconstruct portions of the cervical spine in order to access tumors. Once the bone is removed, surgeons have a direct line of sight to the tumor and are able to remove it in its entirety without having to move or manipulate the spinal cord.

After the tumor is removed, surgeons immediately rebuild the spine with artificial pedicle screws, a reconstruction technique also developed by Ames. The technique is particularly useful in cases in which the tumor is located in the middle of the spinal canal and attached to the lining of the spine. These types of tumors include meningiomas, neurofibromas and exophytic astrocytomas.

Patient Stacey Hall recently underwent surgery to remove a neurofibroma, a usually benign tumor of the peripheral nerves. Hall's tumor caused her skin to be acutely sensitive to touch, her hands to experience numbness, and her legs to collapse from under her at times. "The damage was so severe, the slightest breeze against my skin caused me excruciating pain," said Hall. "The first thing I noticed after my surgery was that my skin no longer hurt for the first time in more than a year."

Most of the surgeries to date have been done on patients with conditions similar to Hall. Neurofibromas can occur as a sporadic condition or as a genetic disorder such as neurofibromatosis. While a common type of spinal tumor, neurofibromas are challenging lesions to approach surgically, according to Ames. Found at the base of the skull on or near the spine, the tumors often sit just below the brain stem and press against the spinal cord as they grow.

Some tumors span several vertebral levels. In time, the pressure against the spinal cord can cause pain, numbness and loss of mobility in the hands, arms and legs. If left untreated, patients can become paralyzed. Because of the proximity to sensitive anatomy including the spinal cord, pharynx, nerves, and major blood vessels, surgeons often refuse to operate for fear of causing irreversible nerve damage, paralysis and even death, Ames noted, and as a result, patients presenting with extensive intradural tumors are often left without hope.

"We are treating patients with this technique who were told by physicians that nothing more could be done," said Ames. "The next step is to train other surgeons in the technique so it is accessible to patients throughout the country."

Ames specializes in spinal reconstructive surgery for trauma, tumors and degenerative disease. His research focuses on new techniques for computer-guided, minimally invasive instrumentation and development of resorbable materials for spine stabilization and growth factor delivery. He is the first surgeon in California to do a percutaneous pre-sacral fusion, of which there have been less than 15 in the country. Ames completed a complex spine fellowship at the Barrow Neurological Institute in Phoenix, Arizona.
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UCSF is a leading university that consistently defines health care worldwide by conducting advanced biomedical research, educating graduate students in the life sciences, and providing complex patient care.
PATIENT INTERVIEWS: Arrangements can be made to interview patients who have undergone this surgery and to view the surgery. Original sketches and photographic images of the procedure are also available.
CONTACT: For more information, or to interview Christopher Ames, MD, contact Vanessa deGier at (415) 476-2557.
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Latest Research on Spinal NF Tumors

Postby Ghostwriter4 » Mon Apr 10, 2006 12:06 pm

HI

I KNOW THIS WAS ORIGINALLY POSTED A WHILE BACK AND IF I STILL LIVED IN CALIFORNIA I MIGHT CONSIDER IT ESPECIALLY SINCE I HAVE FAMIL IN THAT AREA. THOUGH I HAVE A WINDERFUL SPINE DOCTOR IN LA WHO I TRUST SO. ANYWAY, I HAVE BEEN ABLE TO GET MEDICAID NOW AND WAS WONDERING SINCEE MY NEXT MAJOR SURGERY SOON IS MORE CERVICAL SPINE TUMOR SURGERY DO YOU THINK I SHOULD SEE A MEDICAID SPINE GUY OR SOMEBODY WHO MIGHT BE BETTER? THERE ARE NO WRONG ANSWERS JUST WANT TO HEAR WHAT PEOPLE THINK. I MAY HAVE A DELAY IN MY SURGERY SO
THINGS WILL BE MORE DIFFICULT MEDICALLY. NOT SURE WHAT I MIGHT DO ANY THOUGHTS?

AS ALWAYS BE BLESSED
LOVE MICHAEL <img border="0" title="" alt="[Big Grin]" src="biggrin.gif" /> <img border="0" title="" alt="[Big Grin]" src="biggrin.gif" /> <img border="0" title="" alt="[Big Grin]" src="biggrin.gif" />
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Latest Research on Spinal NF Tumors

Postby Jetta » Mon Apr 10, 2006 12:10 pm

Really curious about this.
But Tyler has them all down his spine, not just in the cervical area.
I dont want to make things worse, but I think I will print this off and carry it to his Pedi. and to his and Phillips Neurologist.
Thanks for the info!
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Latest Research on Spinal NF Tumors

Postby Leah2 » Mon Apr 10, 2006 1:33 pm

My spinal tumors are the size of green grapes and they are at EVERY LEVEL of my Spine.
All InOperable.
Plus the MRI shows there is spinal fluid leakage at every level of my spine too.

I'd love to be rid of these darn tumors.
Too bad they are unoperable.

LeahAnne
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Latest Research on Spinal NF Tumors

Postby Ghostwriter4 » Mon Apr 10, 2006 1:49 pm

so given this INFO IF IT WERE YOU AND KNOWING HOW EXPENSIVE IT COULD BE WOULD ANY OF YOU OPT FOR A LESSER DOCTOR IN YOUR NETWORK OR A GUY LIKE THIS?
YOUR THOUGHTS? I TOO HAVE NULTIPLE TUMORS IN MY BRAIN AND SPINAL CORD SO, WHAT DO YOU THINK> MEDICAID DOCTOR OR AA GUY LIKE THIS?
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Latest Research on Spinal NF Tumors

Postby Kitty Lover » Mon Apr 10, 2006 2:25 pm

This is interesting info, seeing that my spinal-cord tumor is from C4-C6. They removed as much as they could, but any further removal is just about impossible.

Thanx.. when I have more time, I'm going to read this article more thoroughly.
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Latest Research on Spinal NF Tumors

Postby Vandaar » Mon Apr 10, 2006 11:23 pm

I would always want to go with the best but can't always afford that luxuary. Sometimes you can find someone they taught and have just as good results.

One thing to think about is that doctors need good support staff to be at their best. Take them away from their home base and they aren't as good.

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Latest Research on Spinal NF Tumors

Postby Chi Chi » Tue Apr 11, 2006 5:28 am

My mother had NF tumors on her spine. It took two surgeries to remove them. First surgery doctor did not get it all. Second surgery done by a different doctor. ALL TUMORS GONE !!!
My oldest daugter had the same kind of tumor laying next to her spine. It was removed sucessfully before it reached her spine. I realize these are a RISKY type of surgery. My mother was told she may never walk again before she had the surgeries done. She not only walks but she can RUN !! (there was a lot of praying going on)

I would not settle for...........anything less.
Hopefully the information I posted at the beginning can be an encouragement for those who have been told their tumors have been inoperable. Wishing everyone here the best and you will be in my prayers.
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Latest Research on Spinal NF Tumors

Postby Ghostwriter4 » Sat Apr 15, 2006 6:11 am

THANKS ALL FOR YOUR INPUT. AND KIMBERLY SORRY I DIDN'T RESPOND TO A pm of yours about BEACHES, NO NOT THE MOVIE, THE REAL FLORIDA ONES! <img border="0" title="" alt="[Razz]" src="tongue.gif" /> I THINK I MAY HAVE THE SPINAL SPECIALIST LOOK AT MY MRI'S AND GIVE ME FEEDBACK AND THEN TAKE IT FROM THERE.
ONLY THING IS THAT(MY Appointment)is not until the end of may WHICH CONCERNS ME SO. ON A RELATED NOTE I FINALLY HAVE AN APPOINTMENT FOR MY PORT FLUSH WHAT I CALL MY LUBE, OIL AND FILTER <img border="0" title="" alt="[Razz]" src="tongue.gif" />
THIS COMING TUESDAY, IT NEEDS TO BE FLUSHED EVERY 6 WEEKS NORMAALLY AND I HAVE GONE DUE TO UNCONTROLLABLE CIRCUMSTANCES ALMOST 6 MONTHS SO
I'LL BE RELIEVED WHEN IT IS DONE AND ALL IS OK <img border="0" title="" alt="[Smile]" src="smile.gif" />

AS ALWAYS BE BLESSED
LOVE MICHAEL <img border="0" title="" alt="[Big Grin]" src="biggrin.gif" /> <img border="0" title="" alt="[Big Grin]" src="biggrin.gif" /> <img border="0" title="" alt="[Big Grin]" src="biggrin.gif" />
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