Torr has one on the left side of his head but it is kind of hard as oppossed to very spongy. Dr. Korf told us last year that it is just a fibroma, similar to the ones just on the skins which look like bumps. He says the only problem it would present is that it might hurt a bit when Torr's hair gets brushed. I have also noticed a couple on my scalp, which I thought were pimples but they have been there for a while and Dr. Korf's was right, they kind hurt of I am not careful whe I brush my hair. Of course this is just our own experience so I am not so sure if it applies to you.
Mom to Victor (age 7) NF- orbital plexiform behind right eye with surgery at age 5 to partially debulk tumor, ODD, ADHD, sensory integration dysfunction, underdeveloped core, tic syndrome, Aspeger's Syndrome; Daniel (2 years) an extremely energetic handful! Wife to Gregory, loving father and gifted composer