MRI - "Hot Spots" on brain

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MRI - "Hot Spots" on brain

Postby Guest » Fri Feb 04, 2000 5:04 am

Hello -
My 3 1/2yr old just had his first MRI yesterday and the doctor at the MRI facility told us he found "Hot Spots" in his brain. He was extremely technical but from what he said it sounded like these are spots that need to be monitored because they may turn into tumors. After we got home we called our doctor and a specialist in boston, both of whom are going to review the report and call us on Monday. The specialist office said it may just be NF spots on the brain which are of no concern.

Has anyone had to deal with these "Hot Spots"? Can you give me any information on them, right now we are just confused and don't know what to think, I've heard of the tumors on the brain but have never heard of the "Hot Spots". Any information would be appreciated.

Thanks
Kristen
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MRI - "Hot Spots" on brain

Postby Guest » Fri Feb 04, 2000 9:37 am

hi! my son, derek, is seven and he has what is called u.b.o's and a hypothlamic glioma on his brain. the ubo's(unidentifed bright objects) seem of no concern to his doctor and are common with nf (or so said our doctor). the glioma needs to be watched thru mri's because if it grows there will be problems. but good news...he just had an mri this week and the glioma has gotten smaller!!!!! just try to be positive and hopefully things will all turn out good. i am thinking of you and your little one. i know what you are going thru.

margaret aka derek's mom
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MRI - "Hot Spots" on brain

Postby Guest » Sat Feb 05, 2000 8:06 pm

Kristen,
Hi! I have a 15 month old son that probably has NF. We were told last July that he had one UBO just like Margaret mentioned in the last post. Then in November, we received a phone call about Timmy's MRI films. Now they think his "spot" may be a neurofibroma or a tumor. We are scheduled for another MRI in April. Our main concern right now is the location of the spot. We think that it is in an area that would be inoperable. I would find out exactly where the spots are and what brain function it is near. I would also ask if it is in an operable area or not. Most often, if tumors aren't causing any trouble, they will just be monitored. I like to be informed in advance of the worst case scenario so I can read up and be knowledgeable. The doctors get a lot more serious with you, when you start throwing around medical terms and they realize that you are well read. Good luck to you and your family. I'll be sure to keep you all in my prayers. It seems like we are both in the wait and see stage right now. Take care.

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Timmy's Mom


[This message has been edited by seesnow (edited February 05, 2000).]
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MRI - "Hot Spots" on brain

Postby Guest » Mon Feb 07, 2000 1:05 pm

Our son has unidentified bright objects (UBOs) on his MRI, and we were told that while these were common in folks with NF1 there is no proven link between UBOs and any other symptoms. At the time (1991, though we've had MRIs since then too), the doctors made it clear that they had no idea why NF1 MRIs showed up with these UBOs.

Hope this clarifies things -- there is no answer, but neither is there cause for alarm.
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MRI - "Hot Spots" on brain

Postby Guest » Mon Feb 07, 2000 3:59 pm

Thank you all. We had our NF doctor plus our regular Neurologist look at the MRI report and they confirm that they are UBO's. Needless to say we are very relieved. Unfortunately the MRI Doctor lead us to believe that these spots could turn into tumors. But thanks to all of you and the doctors who know NF, we know that is not true. We have learned that doctors with a little knowledge about NF can be very dangerous - we now will only deal with
specialist.

Thank you again
Kristen
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MRI - "Hot Spots" on brain

Postby Guest » Wed Feb 09, 2000 9:05 pm

Hi - I have a 5 yr old son dxed now only with "autism". He has had 3 MRIs and while we haven't heard the term UBO - on the report it mentioned "areas of hyperintensity on T2 weighted image" - which sort of sounds like UBO. The differential dxes they gave were demyelination (the one I am thinking fits), dysmyelination, and also they mentioned that some of the lesions (the other word they used for these hyperintense areas) looked like TS. These areas increased in size over the last 2 years. And we were approaching this as a demyelination process.

But, one neuro we saw said that he thought it may be NF1 (mutation) - which explains why I am looking around this board.

My questions are: Did any of you see on the neuroradiology MRI report mention of other possible dxes? Did they actually use the UBo term? DId any of them describe it as I have above? My son doesn't have any of the other symptoms of NF that so many of you describe. The MRI is really the only thing (plus now I see that both autism and NF share the horrible GI symptoms and there is sometimes developmental delay with NF). Any information would be greatly appreciated.

Thanks,

Maura
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MRI - "Hot Spots" on brain

Postby Guest » Thu Feb 10, 2000 6:39 am

Maura,
Our son's geneticist and pediatric neurologist both described the UBOs as you mentioned in your post. They also called it a brain lesion as well. We asked if that meant an actual cut. The neurologist explained to us that a lesion in the brain is simply an area of abnormal cells. It had no mass and was not cancerous.

I also wanted to mention that UBOs are consistent with NF, but they are not a criteria of NF, so if your son has no other symptoms, it is probably unlikely that he has NF. UBOs are also consistent with people that have MS as well.

Some studies say that UBOs cause certain learning disabilities, but other studies refute their findings. They really don't understand it all yet, hence the "Unidentified" in the name.

I hope I was able to answer some of your questions. Take care.

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Timmy's Mom
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MRI - "Hot Spots" on brain

Postby Guest » Thu Feb 10, 2000 1:21 pm

Some doctors don't like the term "UBOs", so I've also seen them referred to as "hystogenic foci".
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