Head Tilt

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Head Tilt

Postby diera » Fri Oct 10, 2008 6:47 pm

I've noticed my one year old seems to be tilting her head more to the right than to the left. I'm not seeing anything else odd about her behavior (her eyes are both tracking, she's eating, etc.) and I don't know if I should get this looked at ASAP or if I'm freaking out over nothing. Has anyone else's child had this symptom? Does the head tilt need to be constant to be worrisome?
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Re: Head Tilt

Postby landnat » Fri Oct 10, 2008 8:21 pm

we notice our son sleeps with head tilted back
does your child have nf and if so what manifestation
Mom to natalie 11yrs old no NF
Landon 7 yrs old NF 1 by mutation diag Jan 06
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Re: Head Tilt

Postby diera » Fri Oct 10, 2008 8:37 pm

She's got multiple cafe au lait spots but no second sign yet so she's unofficial, but then she's only 1.
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Re: Head Tilt

Postby CindyLouWho » Fri Oct 10, 2008 10:03 pm

Has the child had a recent MRI or app't with the pediatric ophthamologist? Head tilting could very well be related to vision issues. Head tilting can be like squinting, a coping mechanism to improve whatever is going on (strabismus, double vision etc). Kids can also pick up all sorts of temporary gestures but I definitely would have it checked out asap.

Hoping it's just one of those things. Keep us posted.

Cindy
All great truths begin as blasphemies. George Bernard Shaw

Don't be discouraged. It's often the last key in the bunch that opens the lock. ~Author Unknown

The most exciting phrase to hear in science, the one that heralds the most discoveries, is not "Eureka!" (I found it!) but "That's funny..." ~Isaac Asimov
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Re: Head Tilt

Postby diera » Fri Oct 10, 2008 10:25 pm

She hasn't had an MRI yet. She had an ophthamologist look at her eyes when she was six months old (six months ago) and everything looked all right to him at the time, but but I don't know how easy it is to really tell with such a young child.

Yeah, I'll probably call on Monday and try to get her NF specialist to take a look at her. Thanks Cindy. I feel like if I gave in to my impulses she'd be there about every three weeks so it's good to have feedback about what is reasonable to call about. I'm scared of putting her through an MRI but at the same time it's also scary to have what's in her head be a big unknown.
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Re: Head Tilt

Postby CindyLouWho » Fri Oct 10, 2008 10:38 pm

No I think this time you are definitely doing the right thing by checking it out. I don't want to scare you though...It really could just be a fluke thing. Also don't forget that even IF it is an eye problem, not all vision issues in NF are tumor related . And not all eye issues in NFers are NF related.

I think some of the info in this article will reassure you that it is totally reasonable to call. (just in case you feel you need the ammunition).

http://www.hollywoodvision.com/html/chi ... ision.html

Cindy
All great truths begin as blasphemies. George Bernard Shaw

Don't be discouraged. It's often the last key in the bunch that opens the lock. ~Author Unknown

The most exciting phrase to hear in science, the one that heralds the most discoveries, is not "Eureka!" (I found it!) but "That's funny..." ~Isaac Asimov
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Re: Head Tilt

Postby Guest » Sat Oct 11, 2008 1:41 pm

Hey there

I agree, it wouldn't hurt to check it out. I have definitly read stuff about head tilting being related to eye issues and like Cindy said, doesn't mean it's NF related. The other thing you might want to think about is a trip to the chiropracter. Not sure how you feel about that but when my son was little he was the worst sleeper in the world and I was trying anything to help him. Someone suggested a chrio and I decided it was worth a try. My son always looked to the left. If he was in his swing, laying on the floor, in his seat whatever, he would look to the left. I would even try and put things for him to look at on his right to encourage him to look the other way but he didn't seem to care. I took him to the chiro and right away he noticed a big knot I guess you'd say in my son's neck. Took him for a few visits and we haven't had any problems since and that was almost a year ago. Our poor babies go through a lot to be born into this world and get pinched nerves and sore muscles just like us. Might be worth a try??

Take care and good luck

Pam
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Re: Head Tilt

Postby cammyview67 » Sat Oct 11, 2008 8:43 pm

My daughter tilted her head and we found out it was due to amboylopia....I may have spelled that incorrectly. It has something to do with the vision in one of her eyes. Its sometimes seen in NF. They patched her eye when she was a little younger.
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Re: Head Tilt

Postby big c » Sun Oct 12, 2008 11:14 am

I would get it checked out an MRI maybe in order. My son had a head tilt and we thought it was due to a vision issue, turns out it was a tumor on his brain stem, he did end up having a year of chemo and lots of therapy to fix it. We figured it was due to his optic nerve tumor which they were monitoring closely and in the end it was not the ( eyes ) at all.
Anyway, the head tilt is gone his year of chemo went very well ( no complications at all ). And even though we are still dealing with plexi forms and optic nerve tumors, he is doing beautifully !! I don't want to " freak you out ", but an MRI is totally worth the trouble to put your mind at ease.

Happy Canadian thanksgiving !!!
gobble gobble.
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Re: Head Tilt

Postby Shawna » Sun Oct 12, 2008 12:43 pm

I would start with your pediatrician. Looking back, we all noticed that our daughter would tilt her head back when watching tv, reading, looking at certain things, she didnt ALWAYS do it, but it was noticed. NOW...we know that her vision was being impaired. Please dont panic, and just start with a visit to your ped and go from there. We are all here for you. I always come here and say "is this normal?" "is this NF?"...it's good that we have this outlet.
-Shawna (mom to Mia, 2 yrs old, NF1, Optic Glioma on both optic nerves, starting Chemo on 9/15/08, lots of CAL's.) www.caringbridge.org/visit/miarashkind
"Ya gotta have rain to see the rainbow"
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