Here at the Children's Tumor Foundation, we champion a team approach to ending neurofibromatosis. And you are a vital part of our team. Together we are transforming lives and building brighter futures for millions of people like Philip Moss and his family. Read about the Moss family below and join us in celebrating the tremendous success they have seen since Philip's enrollment in the clinical trial of the MEK inhibitor selumetinib (AZD6244 hydrogen sulfate) at the National Institutes of Health.
THE MOSS FAMILY
The Moss family has been busy living life to the fullest at their home in Birmingham, Alabama. Renie Moss is an active CTF volunteer, and recently organized the third Birmingham NF Walk. Her husband “Big Philip” is finishing work on his doctoral dissertation to complete his EdD in Higher Education Administration. Their son “Little Philip” enjoys varsity level chess and is finishing his cub scout journey as a Webelos II this year. His sister Helen is head over heels in love with playing soccer, and enjoys anything high energy, artistic, and creative.
"Little Philip continues to be enrolled in the AZD6244 MEK trial through the National Institutes of Health. This drug has been the answer to many prayers for us. At the one year mark since enrolling, Philip’s tumor is now 36% smaller. We rarely hear children ask Philip what is wrong with his neck anymore. The drug does make Philip fatigued and that can be difficult for an eleven-year-old boy with peers that are active in sports and the outdoors. He takes this in stride and continues to amaze us with his resiliency. He keeps us motivated to fight for a cure.” –Renie Moss
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The Children's Tumor Foundation proudly participates in #GivingTuesday, a global day of giving. You can join the movement by making a donation to the Children's Tumor Foundation, and inspire others to give by sharing #givingtuesday on social media.
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Wear NF Awareness on your sleeve year-round! Find CTF-branded t-shirts, hats, bags, and so much more at the Children's Tumor Foundation store.
You can make a contribution to the Children's Tumor Foundation every time you shop on Amazon. To get started, simply visit smile.amazon.com and select CTF from the list of available charitable organizations. AmazonSmile uses your same existing Amazon account and remembers your favorite charity for every future purchase.
Find the best coupons and deals to your favorite stores (including Amazon, Target, Macy's, Best Buy and more), and when you shop a donation gets made to the Children's Tumor Foundation. It's easy!
NF is one of the world’s most common genetic disorders. But it takes many forms, and can be hard to diagnose and treat.
Research is the key. And the NF Registry is the key to research. If you have been diagnosed with any form of neurofibromatosis (including NF1, NF2, and schwannomatosis), or if your child has NF, unite with thousands of others with NF and join the NF Registry today.