Find a Doctor

# Year Institution Name / Clinic Name State
1 2015 Children’s Hospital of Orange County
Neurofibromatosis Clinic
California Info

1. Children’s Hospital of Orange County

Updated on: 11/17/2015
Institution Name: Children’s Hospital of Orange County
Clinic Name: Neurofibromatosis Clinic
Clinic Address: 1201 W. La Veta Avenue, Orange, California 92868, United States Show Map
Phone: 714-288-3500
Areas of NF Specialization: Genetics, Neurology, Surgery, Orthopedics, Glioma, Vasculopathies of NF, Bone/Orthopedics, Learning Disabilities, Psychosocial
NF Clinic Schedule: Other/Varies
Director Name: Zadeh, Neda (MD - Clinical Genetics, Molecular Genetics)
Coordinator Name: Narda Hernandez
Coordinated appointment days? Yes
Total number of individual patients cared for last year:
NF1: NF2: Schwannomatosis: Total:
155 3 1 159
Overall proportion of patients seen last year:
Under 18 (%): 18+ (%):
80.00 20.00
Do you see adult patients directly for routine matters? No
Does the clinic enroll patients for NF clinical trials or clinical research studies? No
Does the clinic offer a support group or other social services for NF patients and/or their families? No
2 2015 Connecticut Children’s Medical Center
Neurofibromatosis Clinic
Connecticut Info

2. Connecticut Children’s Medical Center

Updated on: 11/09/2015
Institution Name: Connecticut Children’s Medical Center
Clinic Name: Neurofibromatosis Clinic
Clinic Address: 505 Farmington Avenue, 2nd Floor, Farmington, Connecticut 06032, United States Show Map
Phone: 860-837-7500
Areas of NF Specialization: Neurology
NF Clinic Schedule: Weekly  |  Days: Tuesday, Wednesday
Director Name: Francis DiMario, MD (Pediatric Neurology)
Coordinator Name: Alyssa White, RN, BSN
Coordinated appointment days? No
Total number of individual patients cared for last year:
NF1: NF2: Schwannomatosis: Total:
87 1 0 88
Overall proportion of patients seen last year:
Under 18 (%): 18+ (%):
90.00 10.00
Do you see adult patients directly for routine matters? No
Does the clinic enroll patients for NF clinical trials or clinical research studies? No
Does the clinic offer a support group or other social services for NF patients and/or their families? No
3 2015 University of Kentucky
Kentucky Neuroscience Institute Neurofibromatosis Clinic
Kentucky Info

3. University of Kentucky

Updated on: 11/19/2015
Institution Name: University of Kentucky
Clinic Name: Kentucky Neuroscience Institute Neurofibromatosis Clinic
Clinic Address: 740 South Limestone, KY Clinic - L445, Lexington, Kentucky 40536, United States Show Map
Phone: 859-323-5661
Areas of NF Specialization: Neurology, Glioma
NF Clinic Schedule: Weekly  |  Days: Friday
Director Name: Lightner, Donita (MD - Child Neurology and Neuro-Oncology)
Coordinator Name: Kim Osbourne
Coordinated appointment days? Yes
Total number of individual patients cared for last year:
NF1: NF2: Schwannomatosis: Total:
64 3 0 67
Overall proportion of patients seen last year:
Under 18 (%): 18+ (%):
56.00 44.00
Do you see adult patients directly for routine matters? Yes
Does the clinic enroll patients for NF clinical trials or clinical research studies? No
Does the clinic offer a support group or other social services for NF patients and/or their families? No


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