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Mar 27
2012

Justin Bell and Racing4Research Win Big in Florida

Posted by Mary Vetting in Racing4Research , nf , neurofibromatosis , Children's Tumor Foundation , awareness

Justin Bell Sweeps Pirelli World Challenge GTS Races in St. Petersburg for Children’s Tumor Foundation / Racing4Research and eBay Motors and Mobile

Late Pass Gives Bell Second Weekend Win and First Career Sweep in the No. 50 Tiger Racing Ford Mustang Boss 302S


ST. PETERSBURG, Florida (March 25, 2012) – Justin Bell scored the first race-weekend sweep in his 25-year motorsports career in the season-opening event of the Pirelli World Challenge at the Grand Prix of St. Petersburg where he backed up yesterday’s opening race win with an equally convincing victory Sunday morning in the No. 50 Tiger Racing Ford Mustang Boss 302S.

JustinBellThe victories are Bell’s first in World Challenge (WC) competition in addition to being firsts in WC for the Children’s Tumor Foundation's (CTF) Racing4Research program and Bell’s partners eBay Motors and Mobile.

Like yesterday, when he won from seventh on the starting grid, Bell had to race through the field again on Sunday. Although he started second, a stalled car in front of him as the green flag dropped quickly put Bell outside of the top-10 in the running order.

“Yesterday was full of unknowns for me,” Bell said. “I had the element of surprise on people and they didn’t know what I was going to be up to. Today I had a car stall in front of me right at the start and I may have been as far down as 12th into the first corner. I was really motivated, after dropping to like the sixth row right at the start, to come back and at least get a podium for the team.”

Bell began to pick up positions before zeroing in on race leader Peter Cunningham just as he did in Saturday’s race. His winning pass once again came in Turn 1, but this time it was less than two laps from the finish, the only race laps Bell led all day.

“The overtaking I had to do was just right on the edge of not being able to make it,” Bell said. “The smallest gap they gave me I went through, but Cunningham was incredibly fair. He went wide, I was actually going to set him up for Turn 4, but he suddenly went wide in Turn 1 and I was like, ‘that’s it, I am done.’ I don’t know who would have come off worse if we hit, but he was incredibly fair and I think he may have known I had him at that point.”

Bell is substitute driving in 2012’s opening WC rounds for reigning class champion and Tiger Racing manager Paul Brown, who is recovering from minor surgery. Bell brought both the backing from eBay Motors and Mobile and his partnership and relationship with the CTF / Racing4Research program with him to the team.

“I am just incredibly happy and thankful to Paul Brown for putting me in the car,” Bell said. “For eBay Motors and Mobile for inviting me and, of course, for these great CTF kids wandering around and supporting us when they have so much else going on, it was all just fantastic.”

About two dozen young NF patients, or “heroes,” and their families visited with Bell and other WC teams at the track this weekend. The CTF / Racing4Research program increases awareness of neurofibromatosis (NF) and raises funds for research to find effective treatments for the debilitating disorder. Donations for the cause can be made at www.ctf.org where additional information on the program, the Foundation, and NF can also be found.

Bell first joined the CTF / Racing4Research program this past January, co-driving a Porsche GT3 in the Rolex 24 At Daytona, and was honored to be racing for the cause again this weekend.

“We came off Daytona on an emotional high if not a success high,” Bell said. “This makes up for a bad result there in the Rolex 24.”

Bell is currently preparing for his second season as the host of The World’s Fastest Car Show Hosted by Justin Bell, a unique web, mobile and app-accessible show available only at eBay Motors and on eBay Mobile.
Next up for Justin Bell and the No. 50 Tiger Racing Ford Mustang Boss 302S team is Round 2 of the Pirelli World Challenge at the Toyota Grand Prix of Long Beach, April 13 – 15.

About the Children's Tumor Foundation and Racing4Research: Developed by the Children’s Tumor Foundation, the Racing4Research (R4R) program utilizes competitive, professional auto racing as a vehicle to increase awareness of neurofibromatosis and raise funds for research through corporate sponsorship, personal donations, and individual fundraising by NF Heroes: children and adults from around the country who live with neurofibromatosis. NF affects one in every 3,000 children, more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined, and can lead to a wide variety of complications, including blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities and excruciating and disabling pain. The Racing4Research program offers children and families living with the disorder a uniquely empowering weekend, and has raised over $1.5 million dollars since its inception five years ago. Donations can be made at www.racing4research.org.

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Feb 21
2012

NFL Star Tim Tebow Takes NF Hero Presli Collins On Quite The "First Date!"

Posted by Mary Vetting in Tim Tebow , Shaquille O'Neal , Presli Collins , NF1 , nf , Cartoon Network , awareness

On February 18, 2012, a 10-year-old girl from Parker, Colorado was taken on her first “date,” one she will certainly never forget. It was with Denver Bronco’s quarterback and all-around "good guy" Tim Tebow.  timandPresli
Presli Collins, who lives with NF1, was invited on this “date” by the Tim Tebow Foundation’s “Wish 15” program, which grants wishes to children with serious illnesses. Presli's mother, Lisa, says they couldn’t believe it when Tebow’s foundation called last week to arrange the trip. “She had just gone through a lot, and when we got the notice for this she was just completely shocked,” said Lisa.

Presli became an "NF Hero" when she was diagnosed with neurofibromatosis in 2008. Affecting 1 in every 3000 people, NF can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. Presli has bravely endured brain and back surgery to excise tumors, and anterior and posterior spinal fusion surgery to correct, as much as possible, scoliosis that has occurred due to NF.

While in Los Angeles, Presli was given true VIP treatment including a new dress and hairstyle, photos on the red carpet with Tebow, and "meet and greets" with celebrities such as Shaquille O'Neal, Nickelodeon star Nathan Kress, and the Disney Channel's China Anne McClain.

redCarpet2Presli's Dad remarked that he’s, "never seen her smile or be as happy as she was that weekend."  Presli's Mom continued, “I can’t even express how grateful we are for the opportunity she’s had [and] the joy she’s had."

"I got to meet Tim Tebow and he was a thousand times nicer than you think he is," said Presli. "In the middle of my dinner he took me to the chocolate fountain. [He also gave me an autographed football that] says, 'To Presli, number 15, Tim Tebow, God bless, go Broncos. Thank you for being an amazing date."

Presli is a happy, active, young girl, but the uncertainty of NF can be wearing. “I think the hardest part is not knowing how [NF will] manifest in her body,” says her mother. But the Collins's remain positive and optimistic, and encourage people to support the Tim Tebow Foundation, Children’s Hospital of Orange County, and the Children’s Tumor Foundation.

Some have said that Tim Tebow is the most exciting player in the NFL today. He is a Heisman Trophy winner, an All-American BCS champion, a first round draft pick, and a record setting professional Quarterback. He can now add "NF Hero's Hero" to his list of accolades, with the sincere gratitude and appreciation of the Children's Tumor Foundation and the millions of families worldwide who face NF everyday.

To learn more, click here for an article and video from The Huffington Post.

PresliTebowShaq

Feb 15
2012

NF, No Longer "Undie-scussed"

Posted by Mary Vetting in nf , neurofibromatosis , Matt Stinchcomb , Jon Stinchcomb , fundraising , Drew Leathers , Cupid's Undie Run , Children's Tumor Foundation , awareness

Valentine’s Day Weekend's Cupid's Undie Run a HUGE Success; Raises $300,000+ for Children’s Tumor Foundation!

Putting the “hilarity” back in “charity,” on February 11, 2012 nearly 3,000 runners nationwide stripped down to their undies and braved the frigid February temps to raise money and awareness for a rather “undie-scussed” issue, neurofibromatosis (NF). Benefiting the Children’s Tumor Foundation, this effort raised more than $300,000 for medical research into treatments for NF. 


Washington D.C.’s wildly popular Cupid’s Undie Run expanded its jaw-dropping charity race to New York, Atlanta, Cincinnati, Denver, and Seattle. Even with five first-year cities, the event sold out in almost every market. It seems Cupid’s has struck a nerve! 


Locals in each city lined the streets to catch the hundreds of scantily-clad joggers racing along Pennsylvania Ave in D.C., 15th Street in NYC, and the waterfront in Seattle, among other locales. 


Cupid’s story is simple: friends Brendan Hanrahan, Chad Leathers, and Bobby GIll founded the event two years ago in D.C., inspired by Leathers’ youngest brother Drew who lives with schwannomatosis.  The team wanted to keep the "fun" in fundraising, and there is no doubt that they have succeeded. Their crazy idea has not only turned heads, but turned a local event into a national movement. 


"What’s so amazing about Cupid’s,” commented co-founder Chad Leathers of the Chidren's Tumor Foundation, “is the level of passion exhibited from runners, spectators, donors, and our volunteer directors. It is truly awe inspiring!” 


Voted "Best Winter Event” in D.C. by The Washington Post in 2011, Cupid’s will surely be vying for similar honors nationwide.

 

For more information on the event, registration, or making a tax-deductible donation, please visit www.cupidsundierun.com.  For sponsorship or media inquiries, please contact Bobby Gill at bobby@cupidsundierun.com.  To see more photos, please click here.

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Cupid's Undie Run starting line in NYC  [Photo credit: Daniel Pagel - DSPstudios.org]

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Drew Leathers, Matt Stinchcomb, Jon Stinchcomb, and friends at Cupid's Undie Run Atlanta

Feb 09
2012

Racing4Research Daytona Wrap-Up

Posted by Mary Vetting in Racing4Research , nf , fundraising , Children's Tumor Foundation , awareness

No. 4 eBay Motors/Children’s Tumor Foundation/Racing4Research Porsche GT3 Perseveres to the Finish In the 50th Anniversary Rolex 24 At Daytona

Largest campaign launch to date with more than $600,000 donated to Children’s Tumor Foundation during landmark race

DAYTONA BEACH, Florida (January 29, 2012) – The No. 4 eBay Motors/Children’s Tumor Foundation/Racing4Research Porsche GT3 team had two goals this weekend: one was to complete the 50th Anniversary Rolex 24 At Daytona, and the other was to raise funding for research and awareness for neurofibromatosis (NF) through the Racing4Research program. Team drivers Ryan Eversley, Justin Bell, Daniel Graeff and Ron Yarab contributed to both efforts during the endurance classic, with Bell driving the car at the end of the race and more than $600,000 raised through Racing4Research and the Children’s Tumor Foundation (CTF).

The team moved off to a quick start with Eversley climbing through the field in the opening hours of the race and Bell running as high as sixth before an unwanted love tap created some issues.

“I had a great time in the car, except when I got tapped, sat there for three laps and was mildly aggravated, but the car felt really good,” Bell said. “We were in sixth place when we got spun. We knew we weren’t going to be the fastest, but it would have been kind of cool to be in the top 10 and we had the pace to achieve that.”

Donations were also on pace this weekend for the Children’s Tumor Foundation/Racing4Research program that increases awareness for NF and raises funds for research to find a cure for the debilitating disease. The program’s fifth-year campaign began at the 50th Anniversary Rolex 24 At Daytona and has the double support of leading online companies eBay Motors and Quicken Loans Inc. The Rolex 24 Racing4Research program is the annual kickoff event for CTF fundraising. Donations can still be made at www.racing4research.org.

The No. 4 eBay Motors/Racing4Research campaign will also be featured later this year in a second season episode of The World’s Fastest Car Show Hosted by Justin Bell, a unique web, mobile and app-accessible show available only at eBay Motors and on eBay Mobile.

“We had a great start to the CTF fundraising campaign, well over $600,000 was raised during the race,” said Jill Beck, Director of the Racing4Research program for the Children’s Tumor Foundation.

“We don’t even know the totals because we have the on-going eBay auctions. Plus donations are still coming in and I’m sure they’ll keep coming in past the race. We’re thrilled. We’ve been so proud to work with eBay Motors and Quicken Loans, they’ve been fantastic partners.”

Graeff was honored to be part of the 50th Anniversary Rolex 24 At Daytona and to represent CTF for the annual fundraising launch.

“This weekend is very hard to put into words, it is very bittersweet,” Graeff said. “For 24 hours every year for what is now the last five years, we’ve been a moment of joy and hope for CTF children and their families. We’ve raised more money here than we have in years before because of the exposure through terrific sponsors like eBay Motors and Quicken Loans.”

After taking the checkered flag with the rest of the competitors, the No. 4 team celebrated their successes in completing the Golden Anniversary event and also launching the 2012 Racing4Research campaign to raise money for the Children’s Tumor Foundation.

“Having Justin Bell on board and SPEED cooperating with us and showing us love on air and through our webcast was great,” Beck said. “I really couldn’t be more proud of what we accomplished this year. I’m just happy that we were able to finish the race, and take the checkered flag for the kids.”

 

About the Children's Tumor Foundation and Racing4Research
Developed by the Children’s Tumor Foundation, the Racing4Research (R4R) program utilizes competitive, professional auto racing as a vehicle to increase awareness of neurofibromatosis and raise funds for research through corporate sponsorship, personal donations, and individual fundraising by NF Heroes: children and adults from around the country who live with neurofibromatosis. NF affects one in every 3,000 children, more than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined, and can lead to a wide variety of complications, including blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities and excruciating and disabling pain. The Racing4Research program offers children and families living with the disorder a uniquely empowering weekend, and has raised over $1.5 million dollars since its inception five years ago. Donations can be made at www.racing4research.org.

r4rDaytona1r4rDaytona2

Jun 05
2011

Checking your Charity? Children's Tumor Foundation Stands Up!

Posted by Kim Hunter-Schaedle in schwannomatosis , Research , public education , NF2 , NF1 , fundraising , development , Children's Tumor Foundation , awareness , Advocacy

An article in this week's Time magazine 'Check your Charity' highlights parameters you should look for if considering supporting a medical research charity or foundation. Issues highlighted include - what percentage of the funds raised actually go to medical research programs?  Is the charity or foundation monitoring outcome metrics to demonstrate progress and success? Children's Tumor Foundation has already demonstrated fiscal success through our maintained 4 Star Charity Navigator rating and we received a mention in the New York Times last December in reference to wise charitable investments.  Now further recognition has come from our metrics of success. In December 2010 the Children's Tumor Foundation was invited by to join Mr. Mike Milken's  FasterCures group TRAIN (The Research Acceleration and Innovation Network). The FasterCures initiative is focused on bringing business acumen to medical foundations, having them set and live up to metrics, and to place foundations as the central pivot of research progress in the foundation/government/industry triangle.  The FasterCures TRAIN is a select group of foundations such as the Multiple Myeloma Research Foundation and Michael J Fox Foundation that have demonstrated innovative approaches to advancing research progress as well as developing successful approaches to monitoring the efficacy of our research programs.  This week's Time article highlights the value of TRAIN, in the words of FasterCures Executive Director Margaret Anderson, "those that are willing to change want to learn from other groups ... and believe in 'Let's make it as efficient as possible.'"
The Children's Tumor Foundation is delighted to be among the select foundations in TRAIN and will continue to strive to make our neurofibromatosis research programs as effective and accountable as possible.

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