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Jan 03
2012

Save the Date: 2012 NF Forum and NF Conference

Posted by Mary Vetting in NF Forum , NF Conference , Children's Tumor Foundation

Save the Date! The Children's Tumor Foundation's annual NF Forum will occur June 8-10, 2012 in New Orleans, LA. This year, for the first time, the Forum will be held adjacent to the NF Conference which is the world's largest gathering of NF researchers, doctors, scientists, and clinicians.

 

Click here to view a video from last year's NF Forum.

 

Click here for photos from 2011's NF Forum.


For more information please contact Traceann Adams at 212-344-6633, ext. 236, or tadams.com. 

Please mark your calendar and plan to attend!

 

STD-forum

Feb 17
2010

NF Forum: NF and Health Insurance

Posted by Garrett Gleeson in NF Forum , Insurance

This is the second in a series of articles outlining the agenda for the 2nd Annual NF Forum in Las Vegas from April 9-11.  The NF Forum is a patient and family medical symposium designed to educate individuals (of all ages) and their families about NF, management options, clinical trials, insurance concerns, social challenges and many other expressions of NF1 and NF2. 

Attaining health insurance and receiving the care promised to those who have health insurance are ongoing challenges facing many of those in the NF community.  Tackling and Understanding Health Insurance will address the concerns of those living with NF and their families.  The session aims to empower the NF community with the tools necessary to find available health insurance, or as the case may be, make certain the insurance policy holders have the coverage they will need if the unexpected occurs.  Topics will include:

  • Genetic Information Nondiscrimination Act; discuss the pending health legislation, and what impact any likely or actual version of the legislation might have to the NF community.
  • Understanding health insurance and your rights as a patient.
  • Action Plan i.e what to do if you get denied for insurance and or how to present your case for insurance.
  • Question and Answer period.

We welcome suggestions for further discussion, please feel free to share in the comment section below.  To learn more about the NF Forum please click here.

About the presenter:

Elaine C. Martinez
Case Manager, Colorectal CareLine
Patient Advocate Foundation

Elaine Martinez is a case manager with the Colorectal CareLine at the Patient Advocate Foundation. She is based at a district office in LasVegas, Nevada. Martinez serves as an active liaison between patients and their insurers, employers and/or creditors to resolve insurance, job retention, and/or debt crisis matters relative to their diagnosis of colorectal cancer. Her responsibilities include: exploring reimbursement levels for prescribed colorectal cancer treatments, researching available clinical trials for this patient population and facilitating enrollment into appropriate patient resource programs for both the uninsured and underinsured colorectal patients. She is also involved with the Lymphedema CareLine where she provides case management assistance to those patients diagnosed with Lymphedema and assists with education, access to care and navigating the reimbursement system. She brings over 27 years of Licensed Practical Nursing experience involved in neurology, obstetrics and gynecology, mental health, gerontology, medical auditing and dermatology. Her experience has always led her to be an advocate for her patients. In her previous position, she was the back office supervisor for a busy dermatology office that treated a large number of skin cancer patients. She was actively involved in obtaining prior authorizations for patient’s medications from insurance companies and initiating the appeals process when necessary.

Elaine graduated with her LPN from Buckeye School of Practical Nursing at Northwest State College in Archbold, Ohio. She also has a certificate in animal laboratory technology from the Institute of Laboratory Technology in Oxford, England. She is married with four children and resides in LasVegas, Nevada.

Jan 15
2010

NF Forum: How to Advocate for your Child

Posted by Garrett Gleeson in NF Forum

This is the first in a series of articles outlining the agenda for the 2nd Annual NF Forum in Las Vegas from April 9-11.  The NF Forum is a patient and family medical symposium designed to educate individuals (of all ages) and their families about the NF disorders, management options, clinical trials, insurance concerns, social challenges and many other expressions of NF1 and NF2.  We welcome your comments and suggestions. 

How to be an advocate for your child: School Related Issues, will take place during the NF1 Specific Workshops section of the program (there will be concurrent NF2 Specific Workshops).  The presentation will be delivered by Dr. David Salsberg, a licensed clinical neuropsychologist and Clinical Instructor at The NYU School of Medicine. The presentation will highlight the main learning and attention issues associated with NF and related IEP/educational information.  Additionally there will be an information booth following the presentation where Dr. Salsberg will be available to discuss specific questions/concerns including:

·         Questions on Learning disabilities

·         Attention deficit disorder

·         Special Education

·         Advocating for services

·         Neuropsychological evaluations

·         Special Education Law

·         Psychological/emotional/behavioral issues

·         Sibling issues

For more information on the NF Forum please click here