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Video: CTF President Annette Bakker at the NF Conference Welcome Dinner

Jun 19, 2017, Posted in Latest News, NF Conference, Video

Children's Tumor Foundation President and Chief Scientific Officer Annette Bakker, PhD, addressed the attendees at the annual NF Conference Welcome Dinner on Saturday, June 10, 2017 at the National Press Club in Washington, DC. Dr. Bakker spoke to the nearly 400 attendees about the importance of disease-focused research, the advantages of team science, and the development of an infrastructure intended to bring biotech and pharmaceutical companies to the NF table. She highlighted CTF's innovative research model, and its tremendous potential for further application to other rare disease, as well as cancer research. The NF Conference is the premier gathering of scientists and clinicians from around the world dedicated to advancing research and care for those living with NF.

Desmond Family Presents Check to Help Fight NF

Jun 19, 2017, Posted in Awareness, Community, Fundraiser, Latest News

On June 15th, nearly 200 members of the Children's Tumor Foundation community from all over Colorado watched the Colorado Rockies play the San Francisco Giants at Coors Field in Denver. The event was the third annual NF Night at the Rockies, which aims to raise funds for CTF and gather local NF families together to enjoy a great evening of baseball.

Dear Dad, Signed Nick Gilbert

Jun 15, 2017, Posted in Latest News, NF Hero, NF1

In honor of Father's Day, NF Hero Nick Gilbert wrote an open letter to his father:

I was diagnosed with NF when I was just 15 months old, so I don’t remember the exact feeling of finding out that I had this condition. It has always been second nature to me to have a positive attitude about my day to day activities, and I owe this all to my dad.

Video: Keynote Speaker Greg Simon at the NF Conference Welcome Dinner

Jun 15, 2017, Posted in Latest News, NF Conference, Video

Greg Simon, Director, Biden Cancer Initiative, was the Keynote Speaker at the 2017 NF Conference Welcome Dinner on Saturday, June 10, 2017. The NF Conference is the premier gathering of scientists and clinicians from around the world dedicated to advancing research and care for those living with NF. Mr. Simon addressed the nearly 400 attendees on the topics of research collaboration and breaking down barriers to research progress. Introducing Mr Simon is Annette Bakker, PhD, Children's Tumor Foundation President and Chief Scientific Officer. Click thru to view his presentation.

In My Own Words: Finding Out I Had NF

Jun 14, 2017, Posted in NF Hero, NF1

By Sarah Gabriel

At age 13 I went in for a checkup, a normal yearly checkup. My goal? To get in and out of the doctors as quick as I could so I could hang out with my friends later on that day. Little did my younger self know, that, that one normal check up would change my life, and the the way I thought about myself. It started with my regular doctor being out sick. I had a different doctor and while sitting on the table explaining my odd feelings in my veins she  casually asked “ Do you think it has  anything to do with you having Neurofibromatosis? Are you anxious about it?” That was the first time I had ever heard that word. I stared at my mom.