Children’s Tumor Foundation Announces Today is World NF Awareness Day For 2 Million People Around the Globe

May 17, 2018, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks around the world will “Shine a Light on NF” to raise awareness for genetic disorder that causes tumors and has no cure at this time

NEW YORK – May 17, 2018 – The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month architectural icons across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of the NF cause.


A Conversation with Ken Rudd, Member of the Children’s Tumor Foundation Board of Directors

May 14, 2018, Posted in Awareness, NF Hero, NF1

The Children’s Tumor Foundation launched in 1978 as the National Neurofibromatosis Foundation (NNFF), established by NF patient Lynne Courtemanche, RN, her doctor Allan E. Rubenstein, MD, and attorney Joel S. Hirschtritt, Esq. A young child at the time, Ken Rudd’s mom, Joan Engel, was President of the Foundation from 1981 through 1984. Ken is now a member of CTF’s Board of Directors. 

As we celebrate 40 years of driving research, expanding knowledge, and advancing care for the NF community, we asked Ken to reflect on the early days of the Foundation, how the community has grown, and the progress made in NF research for treatments and a cure.

NF News Winter 2018 is now online

May 4, 2018, Posted in Awareness, Community, Latest News, Newsletter

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find: 

- 40 Years of Fighting NF
- Orphan Drug Status from FDA
- Synodos for NF2 Research Update
- NF Awareness Month
- Donor Impact: The Harrison Family
- And so much more!

Photo Contest 2018: I Know a Fighter

May 2, 2018, Posted in Awareness, Latest News

Enter the 2018 Children’s Tumor Foundation NF Awareness Month I know a Fighter photo contest!

May is Neurofibromatosis Awareness Month for 1 in 3,000 People Worldwide

May 1, 2018, Posted in Awareness, Latest News, Press Release

The Children’s Tumor Foundation 'I Know a Fighter’ Initiative Brings Attention to Brave Heroes Battling Rare Genetic Disorder

NEW YORK – May 1, 2018 – Neurofibromatosis, or NF, is a genetic disorder that few have heard of, yet it affects over 125,000 Americans and over 2.5 million people worldwide. The Children’s Tumor Foundation is working to change that through a month-long campaign drawing attention to the inspirational and remarkable stories of those living with NF, and the critical need for research to better their lives.

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