Do you have a question about NF? Ask Kate!

Sep 18, 2018, Posted in Community, Video

Ask Kate! is a new weekly YouTube series to answer your questions about neurofibromatosis! Kate Kelts, RN, BSN is the Patient Support Coordinator for the Children's Tumor Foundation, and each week she will answer questions submitted directly by viewers. If you have a question you'd like to see Kate answer, you can include it in the YouTube comments of the latest video, or email Kate at

Click here to subscribe and click the bell to receive alerts when new videos are posted. Click "Read More" to view the first two videos in this exciting new YouTube series!


Your Voice Matters - This Survey Will Help CTF Develop the Tools You Need

Aug 28, 2018, Posted in Community

The Children's Tumor Foundation is dedicated to our vision to End NF. In the spirit of our mission statement, to drive research, expand knowledge, and advance care for the NF Community, we are asking for your help. Our Patient Support Coordinator has created this brief survey, focused on finding out more about how CTF can better meet the education & support needs of our amazing NF family. 

End NF with Ian Desmond

Jul 9, 2018, Posted in Awareness, Community

Going to a Colorado Rockies baseball game?

Whether you are planning to attend a Rockies game at home (at Coors Field in Denver) or on the road, you may be able to meet NF Champion Ian Desmond to express your gratitude for his support through awareness to the NF cause and personal donations for research to Children's Tumor Foundation!

Littlest Tumor Foundation NF Family Wellness Retreat 2018

Jun 25, 2018, Posted in Community, Outside Opportunities

Every August the Littlest Tumor Foundation hosts the NF Family Wellness Retreat in Clintonville, WI. This year, the retreat will take place from August 10-13 at the Imago Dei Village and is free of charge. The mission at the retreat is to strengthen the family unit, build compassion, and address NF manifestations through practicing a healthy lifestyle.

Reflections on NF Forum from First-Time Participants

Jun 15, 2018, Posted in Community, Latest News, NF Forum, NF2, Schwannomatosis

In May 2018, the NF community gathered in Atlanta, GA for a long weekend of patient engagement training, leadership training, research updates, and patient and family support.  We asked two first-time attendees to reflect on their experience.

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