Littlest Tumor Foundation NF Family Wellness Retreat

Jul 24, 2017, Posted in Community, Outside Opportunities

Every August the Littlest Tumor Foundation hosts the NF Family Wellness Retreat in Clintonville, WI. This year, the retreat will take place from August 11-14 at the Imago Dei Village and is free of charge. The mission at the retreat is to strengthen the family unit, build compassion, and address NF manifestations through practicing a healthy lifestyle.

Photo Contest 2017 Winner Announced

Jun 23, 2017, Posted in Awareness, Community, NF Hero, NF1

We’re excited to announce the winner of the 2017 NF Awareness Month “Where in the World do you End NF?” photo contest!

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Desmond Family Presents Check to Help Fight NF

Jun 19, 2017, Posted in Awareness, Community, Fundraiser, Latest News

On June 15th, nearly 200 members of the Children's Tumor Foundation community from all over Colorado watched the Colorado Rockies play the San Francisco Giants at Coors Field in Denver. The event was the third annual NF Night at the Rockies, which aims to raise funds for CTF and gather local NF families together to enjoy a great evening of baseball.

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Sweet Tea for Sophie

May 26, 2017, Posted in Community, Fundraiser, NF1

Our four-year-old daughter, Sophie, is full of personality; so much sass in such a tiny little girl! She's strong and independent, always insisting that she do things "all by myself." She loves to dance and play with her big brothers. And when she grows up she wants to be a ballerina dinosaur. She's silly and giggly and fierce. 

A week after Sophie was diagnosed with NF1 we found ourselves running down Folly Beach in our underwear. The next event in our community listed on the CTF calendar after we got her results was Cupids Undie Run. So there we were, still not even really understanding what NF was or what it meant, but we had to do something!

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