Children’s Tumor Foundation Expands Awareness Campaign to #EndNF

Feb 1, 2018, Posted in Community, Latest News, Press Release

Hundreds of Landmarks Worldwide to ‘Shine a Light on NF’

'I Know a Fighter’ Movement Brings Attention to Brave Heroes Battling Disease

NEW YORK – February 1, 2018 – Neurofibromatosis, also known as NF, is a genetic disorder few have heard of, but the Children’s Tumor Foundation is working to change that with the expansion of its #EndNF campaign.

In Your Community

Jan 29, 2018, Posted in Awareness, Community, Fundraiser, NF Walk

It’s cold outside! These chilly winter days are a great time to reflect upon a number of the NF Walks that took place during the warmer autumn months of August and September. Thanks to all of the participants, volunteers, organizers, and donors who made these events, and all the 2017 NF Walks, so impactful!

Registration for the 2018 NF Forum is Now Open

Jan 25, 2018, Posted in Community, Latest News, NF Forum

This year, the NF Forum is taking place May 4-6, 2018 in Atlanta, GA. The NF Forum is a fun family weekend for NF patients, caregivers, and supporters to come together to learn, network, meet NF experts, learn about clinical and treatment updates, and discover ways to be involved in patient-centered research. Children welcome!

Children’s Tumor Foundation Launches I Know a Fighter 5K Tour

NEW YORK, NY – January 17, 2018 – The temperatures outside may still be in the single digits, but the Children’s Tumor Foundation is looking forward to warmer days ahead, with the announcement of an exciting new 5K race tour called the “I Know a Fighter 5K” to raise awareness and funds for the genetic disorder neurofibromatosis, or NF, which causes tumors to grow on nerves throughout the body. The I Know a Fighter 5Ks will take place in 10 cities across the United States starting this spring.


Q&A: NF Dad George Gaine on the 2nd Annual Two Counties, One Cause Basketball Tournament

Jan 11, 2018, Posted in Awareness, Community, Fundraiser, NF Hero, NF1

On January 20, 2018, the second annual Two Counties, One Cause basketball tournament will take place at Tappan Zee High School in Orangeburg, New York. This charity tournament brings together basketball teams from all over Rockland and Westchester Counties for an evening of basketball competition in the name of NF awareness. Last year, the event raised over $14,000 for NF research.

Tappan Zee High School head basketball coach George Gaine is the driving force behind the charity tournament. Coach Gaine stepped off the court to tell us what inspired him to organize this event.

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