Shine a Light on NF 2018

May 31, 2018, Posted in Awareness, Community

Shine a Light on NF brings NF awareness into the community by lighting up buildings, bridges and monuments in blue and green.


Volunteer Leadership Council Awards Luncheon

May 30, 2018, Posted in Awareness, Community

Earlier this month, in celebration of the Foundation’s 40th Anniversary, 62 registered members of the Volunteer Leadership Council (VLC), our most active and dedicated volunteers, gathered for their annual Leadership Training Conference in Atlanta, GA.  The conference allows VLC members the opportunity to have face-to-face interactions with staff and one another. They gain new insights about the latest scientific research, CTF program enhancements and marketing initiatives, as well as to have time to share with and learn from each other.

Children’s Tumor Foundation Announces Today is World NF Awareness Day For 2 Million People Around the Globe

May 17, 2018, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks around the world will “Shine a Light on NF” to raise awareness for genetic disorder that causes tumors and has no cure at this time

NEW YORK – May 17, 2018 – The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month architectural icons across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of the NF cause.

NF News Winter 2018 is now online

May 4, 2018, Posted in Awareness, Community, Latest News, Newsletter

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find: 

- 40 Years of Fighting NF
- Orphan Drug Status from FDA
- Synodos for NF2 Research Update
- NF Awareness Month
- Donor Impact: The Harrison Family
- And so much more!


Q&A: NF Hero Zoe Comiskey on Her Girl Scout Project to Help other NF Heroes and their Families

Apr 18, 2018, Posted in Community, NF Hero, NF1

Zoe Comiskey is 16 years old and lives with NF1. She is currently working on her Girl Scout Gold Award. She developed her project in conjunction with her doctors at Children’s Hospital of Philadelphia. Zoe will be meeting with newly diagnosed patients and their families to share her story and help them feel better about this new world they’ve now entered.

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