Triathletes will compete and raise money to fund rare disease research
NEW YORK -- The Children’s Tumor Foundation (CTF) is pleased to be the exclusive official charity partner for the Tri Fort Worth triathlon, which takes place in Fort Worth, Texas on May 21, 2017. The Children’s Tumor Foundation is the leading nonprofit organization dedicated to funding research for neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body. NF affects one in 3,000 people of all populations; currently there is no effective treatment or cure.
The start of the month of February means one thing… Cupid’s Undie Run events taking place across the country! As participants continue shedding articles of clothing and raising money to support NF research, Tulsa World spoke with Jerry Willman about finding out he had neurofibromatosis, what it’s like living with NF and why he keeps running the same mile again and again.
By Greg Davis
Iron Butt 4 NF, an odd name for a fundraising event wouldn't you say? If you've ever ridden a motorcycle for hundreds of miles, you can relate to the title.
Rachel Mindrup is a professional artist and art educator. Rachel’s son, Henry, was diagnosed with NF at the young age of 4 months old. As Rachel, with her husband by her side, navigated her way through this new world and figured out how to help her son, she discovered a way to help her family and the entire community, using her artistic talents and interest. Click thru to read Rachel’s story in her own words.
Your ongoing support has allowed us to take huge steps forward in 2016 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.