By Greg Davis
Iron Butt 4 NF, an odd name for a fundraising event wouldn't you say? If you've ever ridden a motorcycle for hundreds of miles, you can relate to the title.
Rachel Mindrup is a professional artist and art educator. Rachel’s son, Henry, was diagnosed with NF at the young age of 4 months old. As Rachel, with her husband by her side, navigated her way through this new world and figured out how to help her son, she discovered a way to help her family and the entire community, using her artistic talents and interest. Click thru to read Rachel’s story in her own words.
Your ongoing support has allowed us to take huge steps forward in 2016 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.
On Saturday, November 19, 2016, Dan and Jennifer Gilbert hosted the beNeFit IV – “An Aquatic Affair to End NF” in downtown Detroit, where more than 1,700 guests helped raise $5.1 million for the Children’s Tumor Foundation (CTF). Over the past four years, the beNeFit has raised a combined total of $16 million toward ending NF.
The Children's Tumor Foundation proudly participates in #GivingTuesday, a global day of giving. You can join the movement by making a donation to the Children's Tumor Foundation, and inspire others to give by sharing #givingtuesday on social media.
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Your every action inspires hope.