In Your Community

Jan 29, 2018, Posted in Awareness, Community, Fundraiser, NF Walk

It’s cold outside! These chilly winter days are a great time to reflect upon a number of the NF Walks that took place during the warmer autumn months of August and September. Thanks to all of the participants, volunteers, organizers, and donors who made these events, and all the 2017 NF Walks, so impactful!

Children’s Tumor Foundation Launches I Know a Fighter 5K Tour

NEW YORK, NY – January 17, 2018 – The temperatures outside may still be in the single digits, but the Children’s Tumor Foundation is looking forward to warmer days ahead, with the announcement of an exciting new 5K race tour called the “I Know a Fighter 5K” to raise awareness and funds for the genetic disorder neurofibromatosis, or NF, which causes tumors to grow on nerves throughout the body. The I Know a Fighter 5Ks will take place in 10 cities across the United States starting this spring.

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Q&A: NF Dad George Gaine on the 2nd Annual Two Counties, One Cause Basketball Tournament

Jan 11, 2018, Posted in Awareness, Community, Fundraiser, NF Hero, NF1

On January 20, 2018, the second annual Two Counties, One Cause basketball tournament will take place at Tappan Zee High School in Orangeburg, New York. This charity tournament brings together basketball teams from all over Rockland and Westchester Counties for an evening of basketball competition in the name of NF awareness. Last year, the event raised over $14,000 for NF research.

Tappan Zee High School head basketball coach George Gaine is the driving force behind the charity tournament. Coach Gaine stepped off the court to tell us what inspired him to organize this event.

10 Steps Forward in NF Research 2017

Your ongoing support has allowed us to take huge steps forward in 2017 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.

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Q&A: NF Mom Kim Laret on Organizing a Powderpuff Game to End NF

Nov 30, 2017, Posted in Awareness, Community, Fundraiser, NF1

In October 2017, Ohio NF Mom and CTF volunteer Kim Laret organized the first powderpuff game to raise money for critical NF research at the Southwest Licking Youth Football and Cheer Football Field.

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