This Year's Annual Little Rock Affair Raises $185,000 for NF Research and NF Camp
On September 7, 2017, Arkansas celebrities showed off their dance moves as they competed for the coveted mirror ball trophy at the 10th Anniversary Spectacular ‘Dancing with Our Stars’ Gala. Months of rehearsals with local dance instructors culminated in a one-time performance that raises money to fund critical neurofibromatosis (NF) research, supports local NF clinics, and sends Arkansas teens to NF Camp.
Local stars partner with local dance instructors for the annual 'Dancing with Our Stars' Gala to raise money for a rare genetic disorder; this year’s 10th Anniversary Spectacular will bring total monies raised to over $1 million dollars.
On June 15th, nearly 200 members of the Children's Tumor Foundation community from all over Colorado watched the Colorado Rockies play the San Francisco Giants at Coors Field in Denver. The event was the third annual NF Night at the Rockies, which aims to raise funds for CTF and gather local NF families together to enjoy a great evening of baseball.
Our four-year-old daughter, Sophie, is full of personality; so much sass in such a tiny little girl! She's strong and independent, always insisting that she do things "all by myself." She loves to dance and play with her big brothers. And when she grows up she wants to be a ballerina dinosaur. She's silly and giggly and fierce.
A week after Sophie was diagnosed with NF1 we found ourselves running down Folly Beach in our underwear. The next event in our community listed on the CTF calendar after we got her results was Cupids Undie Run. So there we were, still not even really understanding what NF was or what it meant, but we had to do something!
A former British Army Physical Training Instructor, NF Endurance athlete Craig Noble is once again dedicating his competitive racing efforts to the Children's Tumor Foundation, this time in the epic Race Across America (RAAM). Craig is part of a four-person team raising funds and awareness for four different charities. Racing day and night against the clock and other teams, they will try to cycle over 3,000 miles, coast to coast across 12 states, in one week. The race starts in Oceanside, California on Tuesday, June 13, and finishes in Annapolis, Maryland on Saturday, June 17 (or whenever the team crosses the finish line!). Craig took a brief break from training to tell us about his passion for competitive racing and what it means to compete in the name of CTF.