Honorees include Freda Lewis-Hall of Pfizer, Lara S. Sullivan of SpringWorks Therapeutics, NF Ambassadors Frankie and Olyviah Moriguchi, and a special tribute to the NF Patient
With Master of Ceremonies Raina Seitel, NBC Host & Correspondent
NEW YORK – On Thursday, November 9, 2017, prominent New York business leaders, together with friends, families and fundraisers, will gather at The Lighthouse on Pier 61 for the annual Children’s Tumor Foundation New York Gala, which this year will “Shine a Light on NF.” Funds raised will support research into neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body and affects 1 in 3,000 births of all populations. There is currently no cure.
Frankie and Olyviah are siblings living in Eugene, Oregon. Both Frankie and Olyviah were diagnosed with NF as babies; their mom, Ayanna, also has NF1. As the 2018 NF Ambassadors, Frankie and Olyviah will attend the NY Gala on November 9, 2017 in New York City. They will also continue their involvement with the Foundation throughout the year at the annual Seattle NF Walk, NF Camp and other events that take place around the country.
This Year's Annual Little Rock Affair Raises $185,000 for NF Research and NF Camp
On September 7, 2017, Arkansas celebrities showed off their dance moves as they competed for the coveted mirror ball trophy at the 10th Anniversary Spectacular ‘Dancing with Our Stars’ Gala. Months of rehearsals with local dance instructors culminated in a one-time performance that raises money to fund critical neurofibromatosis (NF) research, supports local NF clinics, and sends Arkansas teens to NF Camp.
Local stars partner with local dance instructors for the annual 'Dancing with Our Stars' Gala to raise money for a rare genetic disorder; this year’s 10th Anniversary Spectacular will bring total monies raised to over $1 million dollars.
On Saturday, November 19, 2016, Dan and Jennifer Gilbert hosted the beNeFit IV – “An Aquatic Affair to End NF” in downtown Detroit, where more than 1,700 guests helped raise $5.1 million for the Children’s Tumor Foundation (CTF). Over the past four years, the beNeFit has raised a combined total of $16 million toward ending NF.