This Year's Annual Little Rock Affair Raises $185,000 for NF Research and NF Camp
On September 7, 2017, Arkansas celebrities showed off their dance moves as they competed for the coveted mirror ball trophy at the 10th Anniversary Spectacular ‘Dancing with Our Stars’ Gala. Months of rehearsals with local dance instructors culminated in a one-time performance that raises money to fund critical neurofibromatosis (NF) research, supports local NF clinics, and sends Arkansas teens to NF Camp.
The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find:
- Hackathon for NF2
- NF Conference Research Updates
- Awareness Month Highlights
- Stories of NF
- New Parent Education Guidebook
- And so much more!
Early research funded by the Children's Tumor Foundation has led to developments in schwannomatosis research. One award (2008) was for the development of the first mouse model for schwannomatosis with the same underlying gene mutations found in schwannomatosis patients. The second award (2011) was to support their use in a screening platform for schwannomatosis therapeutic agents.
The August issue of EMBO Molecular Medicine features an article authored by Children’s Tumor Foundation President and Chief Scientific Officer Annette Bakker, PhD, and Salvatore La Rosa, PhD, Children’s Tumor Foundation VP, Research & Development about the larger role foundations are playing within the rare disease research ecosystem. EMBO Molecular Medicine is a peer-reviewed, online open access journal dedicated to a new research discipline at the interface between clinical research and basic biology.
Synodos for Schwannomatosis, an international consortium of clinicians and scientists from multiple disciplines, was launched at a full team meeting in Toronto, Canada on May 1, 2017. At the conclusion of this inaugural meeting, we met with the leaders of this exciting new consortium, who spoke candidly about the meeting, schwannomatosis research, and what is at stake for this important project.