Synodos for Schwannomatosis Inaugural Meeting

On May 1, 2017, an international consortium of clinicians and scientists from multiple disciplines met in Toronto, Canada to officially launch the Synodos for Schwannomatosis project. Led by Dr. Gelareh Zadeh from University of Toronto and Dr. Laura Papi from University of Florence, Italy, the project aims to perform an extensive molecular analysis of schwannomatosis tumor samples to identify new therapeutic targets, and advance the understanding and management of the disease, with special focus on pain.

Today is World NF Awareness Day

May 17, 2017, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks in the U.S., U.K., Canada, and Austria will “Shine a Light on NF” to raise awareness for rare genetic disorder

NEW YORK – May 17, 2017 – The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month, buildings, bridges, monuments, and landmarks across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of NF. 

Children’s Tumor Foundation Receives 4-Star Rating from Charity Navigator 8th Year in a Row

May 10, 2017, Posted in Latest News

The Children's Tumor Foundation is excited to announce that it has once again been honored with a 4-star rating from Charity Navigator, America's largest and most-utilized independent evaluator of philanthropies.

This is the 8th year in a row that Charity Navigator has given the Foundation its coveted 4-star rating for sound fiscal management and commitment to accountability and transparency.

NF NEWS Spring 2017 is now online

May 2, 2017, Posted in Awareness, Community, Latest News, Newsletter

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find: 

- MEK Clinical Trial Published in New England Journal of Medicine
- CRA Awardee Receives $1.5M to Continue Research
- NF Clinic Network Grows
- Stories of NF
- Awareness Month: What You Can Do
- And so much more!

Children’s Tumor Foundation Recognizes Neurofibromatosis Awareness Month with Grassroots Campaigns and Local Events

May 1, 2017, Posted in Awareness, Community, Latest News, Press Release

Raising Awareness for Genetic Disorder that affects 1 in 3,000

NEW YORK – May 1, 2017 – Today the Children’s Tumor Foundation announced its annual month-long campaign to raise awareness about neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body. It affects 1 in 3,000 people of all populations; there is currently no treatment or cure.

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