10 Steps Forward in NF Research 2016

Your ongoing support has allowed us to take huge steps forward in 2016 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.

Detroit Gala Raises $5.1 Million for NF Research

Dec 13, 2016, Posted in Community, Fundraiser, Galas, Latest News

On Saturday, November 19, 2016, Dan and Jennifer Gilbert hosted the beNeFit IV – “An Aquatic Affair to End NF” in downtown Detroit, where more than 1,700 guests helped raise $5.1 million for the Children’s Tumor Foundation (CTF). Over the past four years, the beNeFit has raised a combined total of $16 million toward ending NF. 

CTF-sponsored study published on Internet support groups for parents of children with NF1

Dec 13, 2016, Posted in Collaborations, Latest News, NF1, Published, Science

Chronic illness in youth poses numerous challenges to the parents who care for them. Across various pediatric populations, psychological functioning in parents is compromised by the stress of having a child with special healthcare needs. This pilot study, Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1,  investigated the feasibility and preliminary efficacy of an Internet Support Group (ISG) for parents of children with NF1. 

NF NEWS Vol. IV 2016 is now online

Dec 5, 2016, Posted in Awareness, Community, Latest News, Newsletter

The new issue of NF News, the official newsletter of the Children's Tumor Foundation, is now available! In this issue you will find: 

- 2017 Holiday Campaign: Together, we believe we can find an end to NF
- Successful Galas: Evenings to remember across the country!
- New Year, New Strategies: Looking forward in research priorities 
- MEK Inhibitor Clinical Trial Update: Meet the Moss Family
- And so much more!


Dr. Brigitte Widemann now Chief, Pediatric Oncology Branch at the NCI

Nov 30, 2016, Posted in Latest News, Science

We are overjoyed to congratulate Dr. Brigitte Widemann, the Foundation's 2016 Children's Medical Humanitarian Award recipient, on her well-deserved promotion to Chief, Pediatric Oncology Branch at the National Cancer Institute's Center for Cancer Research.

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