We’re proud to announce that our latest annual report – titled From Process to Progress – is now available to read online. Outlining the Foundation’s activities over the past year, from research to awareness to patient support, the annual report highlights a vibrant NF community that is making great progress in the fight to end NF. Additionally, the financial pages offer transparency on how funds are spent, earning the Foundation a four-star rating from Charity Navigator once again. And of course, none of this is possible without the support of all of you – the thousands of donors who give to ensure that NF research and programs continue.
Synodos for Schwannomatosis, an international consortium of clinicians and scientists from multiple disciplines, was launched at a full team meeting in Toronto, Canada on May 1, 2017. At the conclusion of this inaugural meeting, we met with the leaders of this exciting new consortium, who spoke candidly about the meeting, schwannomatosis research, and what is at stake for this important project.
We are thrilled to announce that Children’s Tumor Foundation President and Chief Scientific Officer Annette Bakker, PhD, has been announced as a recipient of a 2017 RARE Champion of Hope award.
The NF Registry is delivering on its promise to be a valid and useful tool for both patients and researchers. This is the conclusion of an analysis published in the journal PLOS One in June 2017. Not only are thousands of patients from all over the world contributing their data to the Registry, it is being actively used, and appreciated, by researchers working on all forms of NF.