Children’s Tumor Foundation Exclusive Charity Partner for Tri Fort Worth

Triathletes will compete and raise money to fund rare disease research

NEW YORK -- The Children’s Tumor Foundation (CTF) is pleased to be the exclusive official charity partner for the Tri Fort Worth triathlon, which takes place in Fort Worth, Texas on May 21, 2017. The Children’s Tumor Foundation is the leading nonprofit organization dedicated to funding research for neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body.  NF affects one in 3,000 people of all populations; currently there is no effective treatment or cure.


In NF Hero’s Honor, Susan Haag is First Woman to Complete 100 Full Distance Triathlons

Nov 18, 2016, Posted in Fundraiser, Latest News, NF Endurance

On November 5 at IRONMAN Florida, Susan Haag became the first woman to complete 100 full distance (140.6 miles) triathlons.  This event is a single-day endurance event comprised of a 2.4-mile swim, followed by a 112-mile bike ride, and then a 26.2-mile marathon run through Panama City Beach, Florida and its surrounding areas. “So many people were stopping me and friends were running alongside me saying, ‘This woman is doing her 100th! This woman is doing her 100th!’ It’s made it special because everyone knew the significance of the race," Susan told the Florida Times-Union after the race.


First Woman to Attempt 100 Full Distance Triathlons Races IRONMAN Florida

50-year-old Florida triathlete will complete 140.6 mile race in honor of young child living with genetic disorder

Children’s Tumor Foundation to be Official Charity Partner of IRONMAN Florida for Third Consecutive Year

NEW YORK -- For the third year in a row, the Children’s Tumor Foundation (CTF) is pleased to be the exclusive Official Charity Partner for the IRONMAN® Florida triathlon that will take place in Panama City, Florida on November 5, 2016.


NFE Athlete Spotlight: Monique Hebert-Bublyk

Apr 26, 2016, Posted in Awareness, Fundraiser, NF Endurance, NF Hero

Monique Hebert-Bublyk’s son Evan passed away due to complications from neurofibromatosis. In August, Monique will compete with the NF Endurance Team in Tough Mudder, a team-oriented obstacle course designed to test teamwork, physical strength, and mental grit.

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