In May 2018, the NF community gathered in Atlanta, GA for a long weekend of patient engagement training, leadership training, research updates, and patient and family support. We asked two first-time attendees to reflect on their experience.
This year, the NF Forum is taking place May 4-6, 2018 in Atlanta, GA. The NF Forum is a fun family weekend for NF patients, caregivers, and supporters to come together to learn, network, meet NF experts, learn about clinical and treatment updates, and discover ways to be involved in patient-centered research. Children welcome!
The Children's Tumor Foundation (CTF) is hosting the 2016 NF Conference/Forum, the largest worldwide meeting dedicated entirely to neurofibromatosis (NF), a genetic disorder that affects 1 in 3,000 people and causes tumors to grow throughout the body.
Last week, the NF community gathered in Scottsdale, AZ for a long weekend of leadership training, research updates, and patient and family support. We asked Nicole Steinert to reflect on attending her first Leadership Summit and NF Forum.
Ken Linkous attended his first NF Forum in Washington,D.C., last year. As we gear up for this year’s gathering in Scottsdale, AZ, we asked Ken to look back on his experience and share his thoughts.
The smiles. The warmth. The loving families. The NF Heroes! The hope-filled eyes of everyone in attendance! This is what I remember from my first-ever NF Forum in Washington D.C. in 2014.