Reflections on NF Forum from First-Time Participants

Jun 15, 2018, Posted in Community, Latest News, NF Forum, NF2, Schwannomatosis

In May 2018, the NF community gathered in Atlanta, GA for a long weekend of patient engagement training, leadership training, research updates, and patient and family support.  We asked two first-time attendees to reflect on their experience.

Registration for the 2018 NF Forum is Now Open

Jan 25, 2018, Posted in Community, Latest News, NF Forum

This year, the NF Forum is taking place May 4-6, 2018 in Atlanta, GA. The NF Forum is a fun family weekend for NF patients, caregivers, and supporters to come together to learn, network, meet NF experts, learn about clinical and treatment updates, and discover ways to be involved in patient-centered research. Children welcome!

Children’s Tumor Foundation Hosts World’s Largest Neurofibromatosis Conference June 17-21 in Austin, Texas

The Children's Tumor Foundation (CTF) is hosting the 2016 NF Conference/Forum, the largest worldwide meeting dedicated entirely to neurofibromatosis (NF), a genetic disorder that affects 1 in 3,000 people and causes tumors to grow throughout the body.

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What NF Forum Meant to Me

Apr 24, 2015, Posted in NF Forum

Last week, the NF community gathered in Scottsdale, AZ for a long weekend of leadership training, research updates, and patient and family support. We asked Nicole Steinert to reflect on attending her first Leadership Summit and NF Forum.

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NF Forum: Inspiring Hope

Feb 26, 2015, Posted in Community, NF Forum

Ken Linkous attended his first NF Forum in Washington,D.C., last year. As we gear up for this year’s gathering in Scottsdale, AZ, we asked Ken to look back on his experience and share his thoughts.

The smiles. The warmth. The loving families. The NF Heroes! The hope-filled eyes of everyone in attendance! This is what I remember from my first-ever NF Forum in Washington D.C. in 2014.