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Q&A: NF Mom Kristy Stewart on the End NF Car Hitting the Road in Kentucky

Aug 22, 2017, Posted in Awareness, Community, NF Hero, NF1

On August 10, 2017, the 65th Annual NIBROC Parade in Corbin, Kentucky featured the debut of a very special car driven by Wallen’s Towing & Recovery, a local Corbin automotive company. The parade is part of a three day festival that includes activities for all age groups and interests.

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Speaking Out in School Prepared Me to Speak Up for My Son

Aug 17, 2017, Posted in Community, NF Hero, NF1

By LaShannon Spencer

I am very loud. Some people might even say that I am obnoxious. Although, I’m less crude now, than I was 10 years ago, I still am not always the perfect lady. I was in trouble in school, mostly for talking. I talk, a lot. I tend to be outspoken, I’m honest to fault, and I stand up for what I believe in.

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Stories of NF: Amelia N.

Aug 16, 2017, Posted in NF Hero, NF2

Amelia was diagnosed with NF2 at the age of 4. We are constantly at doctors and very scared of anything new that comes up. Her brain tumor was malignant and a grade 3, which was very scary and turned our lives upside down. We have become stronger by keeping things positive, crossing bridges only when they appear, and keeping everything "yellow" (Amelia's favorite color).

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Stories of NF: Katie G.

Aug 1, 2017, Posted in NF Hero, NF1

When I had just turned four years old my mother became very concerned. She noticed I had a lot of bruising. She thought I might have leukemia, but the bruises weren't going away. The pediatrician looked at my cafe au lait spots and measured my head. He then stepped out of the room and he brought one of the other doctors in the group in. By the time my mother and I had left, all five doctors in the group had looked at me and referred us to the genetics department at the Los Angeles children's hospital. When we left the pediatrician’s office, my Mom went straight to the library and looked up everything she could on NF.

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Gaining Knowledge About Neurofibromatosis Empowered Me

Jul 25, 2017, Posted in Awareness, NF Hero, NF1

By Kelly Rulle

Recently, I was asked the following, “What's one "survival tip" you'd like to share with other people living with neurofibromatosis (NF)?” So many things ran through my mind: dealing with bullies, hurtful comments, or painful days, how could I pick just one? But if I had to say just one thing, it would be, “Learn!”

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