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Stories of NF: Kaiden D.

Sep 18, 2017, Posted in NF Hero, NF1

Did you know that the name Kaiden means fighter or warrior? Even though I am only 9, I have been a fighter my entire life. On April 25, 2016, I had to have my leg amputated due to complications with NF. Losing my leg was very hard for me and everyone in my family. We knew that once the surgery took place, things would never be the same again.

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Stories of NF: Andrea

Sep 12, 2017, Posted in NF Hero, NF1

NF1 has been impacting my life since I can remember. I had an optic pathway glioma in my right optic nerve which, when I was younger, pushed my right eye in a weird shape and position in my face (now prosthetic).

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Q&A: NF Mom Kristy Stewart on the End NF Car Hitting the Road in Kentucky

Aug 22, 2017, Posted in Awareness, Community, NF Hero, NF1

On August 10, 2017, the 65th Annual NIBROC Parade in Corbin, Kentucky featured the debut of a very special car driven by Wallen’s Towing & Recovery, a local Corbin automotive company. The parade is part of a three day festival that includes activities for all age groups and interests.

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Speaking Out in School Prepared Me to Speak Up for My Son

Aug 17, 2017, Posted in Community, NF Hero, NF1

By LaShannon Spencer

I am very loud. Some people might even say that I am obnoxious. Although, I’m less crude now, than I was 10 years ago, I still am not always the perfect lady. I was in trouble in school, mostly for talking. I talk, a lot. I tend to be outspoken, I’m honest to fault, and I stand up for what I believe in.

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Stories of NF: Katie G.

Aug 1, 2017, Posted in NF Hero, NF1

When I had just turned four years old my mother became very concerned. She noticed I had a lot of bruising. She thought I might have leukemia, but the bruises weren't going away. The pediatrician looked at my cafe au lait spots and measured my head. He then stepped out of the room and he brought one of the other doctors in the group in. By the time my mother and I had left, all five doctors in the group had looked at me and referred us to the genetics department at the Los Angeles children's hospital. When we left the pediatrician’s office, my Mom went straight to the library and looked up everything she could on NF.

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