World’s Largest Gathering of NF Experts To Be Held in Washington, D.C.

NF CONFERENCE TAKING PLACE AT THE RENAISSANCE HOTEL DOWNTOWN WASHINGTON, DC JUNE 10-13, 2017

WITH KEYNOTE SPEAKER GREG SIMON, DIRECTOR, BIDEN CANCER INITIATIVE

Today is World NF Awareness Day

May 17, 2017, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks in the U.S., U.K., Canada, and Austria will “Shine a Light on NF” to raise awareness for rare genetic disorder

NEW YORK – May 17, 2017 – The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month, buildings, bridges, monuments, and landmarks across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of NF. 

Children’s Tumor Foundation Recognizes Neurofibromatosis Awareness Month with Grassroots Campaigns and Local Events

May 1, 2017, Posted in Awareness, Community, Latest News, Press Release

Raising Awareness for Genetic Disorder that affects 1 in 3,000

NEW YORK – May 1, 2017 – Today the Children’s Tumor Foundation announced its annual month-long campaign to raise awareness about neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body. It affects 1 in 3,000 people of all populations; there is currently no treatment or cure.

Children’s Tumor Foundation Exclusive Charity Partner for Tri Fort Worth

Triathletes will compete and raise money to fund rare disease research

NEW YORK -- The Children’s Tumor Foundation (CTF) is pleased to be the exclusive official charity partner for the Tri Fort Worth triathlon, which takes place in Fort Worth, Texas on May 21, 2017. The Children’s Tumor Foundation is the leading nonprofit organization dedicated to funding research for neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body.  NF affects one in 3,000 people of all populations; currently there is no effective treatment or cure.

International Organizations Work Together to “Shine a Light on NF” Around the Globe

Feb 1, 2017, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks in the U.S., U.K., Canada, and Australia will “Shine a Light on NF” to raise awareness for rare genetic disorder

NEW YORK – February 1, 2017 – The Children’s Tumor Foundation is pleased to announce that in May, in honor of NF Awareness Month, buildings, bridges, monuments, and landmarks across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of NF. NF is a genetic disorder that affects 1 in 3,000 births of all populations, and causes tumors to grow on nerves throughout the body. It can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. There is not yet a cure.

Next Page