Children’s Tumor Foundation Exclusive Charity Partner for Tri Fort Worth

Triathletes will compete and raise money to fund rare disease research

NEW YORK -- The Children’s Tumor Foundation (CTF) is pleased to be the exclusive official charity partner for the Tri Fort Worth triathlon, which takes place in Fort Worth, Texas on May 21, 2017. The Children’s Tumor Foundation is the leading nonprofit organization dedicated to funding research for neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body.  NF affects one in 3,000 people of all populations; currently there is no effective treatment or cure.

International Organizations Work Together to “Shine a Light on NF” Around the Globe

Feb 1, 2017, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks in the U.S., U.K., Canada, and Australia will “Shine a Light on NF” to raise awareness for rare genetic disorder

NEW YORK – February 1, 2017 – The Children’s Tumor Foundation is pleased to announce that in May, in honor of NF Awareness Month, buildings, bridges, monuments, and landmarks across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of NF. NF is a genetic disorder that affects 1 in 3,000 births of all populations, and causes tumors to grow on nerves throughout the body. It can lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. There is not yet a cure.

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First Woman to Attempt 100 Full Distance Triathlons Races IRONMAN Florida

50-year-old Florida triathlete will complete 140.6 mile race in honor of young child living with genetic disorder

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The Children’s Tumor Foundation and Vice President Biden’s National Cancer Moonshot Initiative

Oct 26, 2016, Posted in Collaborations, Latest News, Press Release, Science

Foundation President Annette Bakker Participates in Key Meetings Dedicated to Accelerating the Cure for Cancer

Children’s Tumor Foundation Hosts Annual Gala, “Imagine a World Without NF,” to Support Rare Genetic Disorder

Oct 11, 2016, Posted in Fundraiser, Galas, Latest News, Press Release

NEW YORK – On Wednesday, October 19, 2016, leading New York business leaders, together with friends, families and fundraisers, will gather at Current on Pier 59 for the annual Children’s Tumor Foundation New York Gala. This year’s theme asks everyone to “Imagine a World Without NF.” Funds raised will support research into neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body and affects 1 in 3,000 births. There is currently no cure.

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