Children’s Tumor Foundation Hosts “Shine a Light on NF” Gala to Support Rare Disease Research

Nov 6, 2017, Posted in Fundraiser, Galas, Latest News, Press Release

Honorees include Freda Lewis-Hall of Pfizer, Lara S. Sullivan of SpringWorks Therapeutics, NF Ambassadors Frankie and Olyviah Moriguchi, and a special tribute to the NF Patient

With Master of Ceremonies Raina Seitel, NBC Host & Correspondent

NEW YORK – On Thursday, November 9, 2017, prominent New York business leaders, together with friends, families and fundraisers, will gather at The Lighthouse on Pier 61 for the annual Children’s Tumor Foundation New York Gala, which this year will “Shine a Light on NF.” Funds raised will support research into neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves throughout the body and affects 1 in 3,000 births of all populations. There is currently no cure.

The Children’s Tumor Foundation and PLOS ONE Announce a New Funder-Publisher Partnership

The Children’s Tumor Foundation (CTF) and the scientific journal PLOS ONE are collaborating on a new funding program in the area of neurofibromatosis (NF) research. The new initiative, called the Drug Discovery Initiative Registered Report (DDIRR) 2017 Awards, is a funder-publisher partnership to integrate the Registered Reports model in the grant application process.

Arkansas Celebrities Perform in Dance Competition to Raise Money for Children’s Tumor Foundation

Aug 15, 2017, Posted in Community, Fundraiser, Galas, Press Release

Local stars partner with local dance instructors for the annual 'Dancing with Our Stars' Gala to raise money for a rare genetic disorder; this year’s 10th Anniversary Spectacular will bring total monies raised to over $1 million dollars.

World’s Largest Gathering of NF Experts To Be Held in Washington, D.C.

NF CONFERENCE TAKING PLACE AT THE RENAISSANCE HOTEL DOWNTOWN WASHINGTON, DC JUNE 10-13, 2017

WITH KEYNOTE SPEAKER GREG SIMON, DIRECTOR, BIDEN CANCER INITIATIVE

Today is World NF Awareness Day

May 17, 2017, Posted in Awareness, Community, Latest News, Press Release

On May 17, hundreds of landmarks in the U.S., U.K., Canada, and Austria will “Shine a Light on NF” to raise awareness for rare genetic disorder

NEW YORK – May 17, 2017 – The Children’s Tumor Foundation is pleased to announce that in recognition of NF Awareness Month, buildings, bridges, monuments, and landmarks across the globe will show their support in the fight against neurofibromatosis (NF) by lighting up in blue and green, the official colors of NF. 

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