The NF Registry is delivering on its promise to be a valid and useful tool for both patients and researchers. This is the conclusion of an analysis published in the journal PLOS One in June 2017. Not only are thousands of patients from all over the world contributing their data to the Registry, it is being actively used, and appreciated, by researchers working on all forms of NF.
Children's Tumor Foundation Research & Development VP Salvo La Rosa was interviewed by Outsourcing-Pharma.com on how disease-focused foundations and contract research organizations (CROs) are working together to bridge the gap between drug discovery and development, a topic that will be addressed at BIO2017, the global event for biotechnology, this week.
Chronic illness in youth poses numerous challenges to the parents who care for them. Across various pediatric populations, psychological functioning in parents is compromised by the stress of having a child with special healthcare needs. This pilot study, Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1, investigated the feasibility and preliminary efficacy of an Internet Support Group (ISG) for parents of children with NF1.
A valuable collaborator on the Synodos for NF2 consortium, Dr. Vijaya Ramesh’s work was recently showcased on the Congressionally Directed Medical Research Programs (CDMRP) homepage.
UF Insider, the official online publication of the University of Florida College of Medicine, recently published an article about Margaret “Peggy” Wallace, Ph.D., a professor in the UF College of Medicine’s department of molecular genetics and microbiology, and recipient of a Children's Tumor Foundation contract award.