New Webinar Series: Ask the Expert

Jan 8, 2018, Posted in Latest News, NF1, NF2, Schwannomatosis, Science, Video

We at CTF understand that not everyone living with NF is able to be seen by an NF expert on a regular basis or attend NF Forums, symposiums, or conference. With that in mind we are excited to bring you this webinar series!

10 Steps Forward in NF Research 2017

Your ongoing support has allowed us to take huge steps forward in 2017 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.

CTF-funded International Schwannomatosis Database Published in Medical Journal

Oct 30, 2017, Posted in Latest News, Published, Schwannomatosis

An article about the Children’s Tumor Foundation-funded International Schwannomotosis Database that was published in a recent issue of American Journal of Medical Genetics was just added to the PubMed US National Library of Medicine, a database hosted by the National Institutes of Health that houses more than 27 million citations for biomedical literature.

First Synodos Network Meeting Hosted by CTF

Earlier this month, more than 70 researchers, clinicians, patients, staff, and other experts gathered in Palm Beach, Florida for the first Synodos Network Meeting, hosted by the Children’s Tumor Foundation.


Early research funded by CTF has led to breakthroughs in schwannomatosis research

Aug 23, 2017, Posted in Latest News, Published, Schwannomatosis, Science

Early research funded by the Children's Tumor Foundation has led to developments in schwannomatosis research. One award (2008) was for the development of the first mouse model for schwannomatosis with the same underlying gene mutations found in schwannomatosis patients. The second award (2011) was to support their use in a screening platform for schwannomatosis therapeutic agents.

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