On May 1, 2017, an international consortium of clinicians and scientists from multiple disciplines met in Toronto, Canada to officially launch the Synodos for Schwannomatosis project. Led by Dr. Gelareh Zadeh from University of Toronto and Dr. Laura Papi from University of Florence, Italy, the project aims to perform an extensive molecular analysis of schwannomatosis tumor samples to identify new therapeutic targets, and advance the understanding and management of the disease, with special focus on pain.
Your ongoing support has allowed us to take huge steps forward in 2016 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.
The Children’s Tumor Foundation is pleased to announce the launch of the 2017 Young Investigator Award (YIA). Interested candidates can submit their letters of intent, also referred to as pre-applications, via CTF’s online application portal from Dec 12, 2016 to Jan 9, 2017. Initiated in 1985, the YIA is CTF’s longest running award program and provides two-year salary support to outstanding early career scientists worldwide who are interested in becoming independent investigators in neurofibromatosis.
“I learned of my schwannomatosis diagnosis at the age of 32. I have more than 20 tumors and counting. I live in pain daily, but I do not allow this pain to stop me from moving forward. I do worry about the future knowing that I have a tumor on my liver that is growing and inoperable, but I will not let that stop me in helping raise awareness for NF."
Like the rest of the NF community, we are stunned after watching this week’s episode of “Scream Queens”, titled “Warts & All.” In addition to providing escape and entertainment, television shows have the capacity to teach and make the audience feel something. However, this show needlessly elicited pain and anger in a community seeking nothing more than kindness and acceptance.