Registration for the 2017 NF Conference is now open

Feb 17, 2017, Posted in NF Conference, Science

Join us June 10-13, 2017 in Washington, DC for the annual NF Conference, a global event attracting more than 300 participants worldwide across a wide range of scientific disciplines, from research and clinical backgrounds, all focused on improving outcomes for patients with neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis.

Call for Applications for the class of 2017 Francis S. Collins Scholars

Jan 9, 2017, Posted in NF1, Outside Opportunities, Science

The Neurofibromatosis Therapeutic Acceleration Program (NTAP) is now accepting applications for the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. The Collins Scholars program brings together a community of exceptionally well-trained clinician scientists who will be leaders in the field of NF1 research.

10 Steps Forward in NF Research 2016

Your ongoing support has allowed us to take huge steps forward in 2016 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.

MPNST Research Initiative led by Boston Children’s Hospital to Support MPNST-focused Young Investigator Awards

Dec 15, 2016, Posted in Collaborations, NF1, Science

The Children's Tumor Foundation's Young Investigator Award program received a boost this month when the Boston Children's Hospital Neurofibromatosis Program decided to partner with CTF to help fund the 2017 Young Investigator Awards. Dr. David Miller of Boston Children's Hospital directs the research initiative focused on MPNST, a malignant neurofibroma occurring in a small minority of NF1 patients that typically has a poor treatment outcome.

CTF-sponsored study published on Internet support groups for parents of children with NF1

Dec 13, 2016, Posted in Collaborations, Latest News, NF1, Published, Science

Chronic illness in youth poses numerous challenges to the parents who care for them. Across various pediatric populations, psychological functioning in parents is compromised by the stress of having a child with special healthcare needs. This pilot study, Feasibility and Preliminary Efficacy of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1,  investigated the feasibility and preliminary efficacy of an Internet Support Group (ISG) for parents of children with NF1. 

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