10 Steps Forward in NF Research 2016

Your ongoing support has allowed us to take huge steps forward in 2016 in the fight against NF. Your efforts and contributions have been instrumental in advancing neurofibromatosis research, providing hope for the millions worldwide who live with NF, and bringing us ever closer to our shared goal of ending NF forever.

Synodos for NF1 Team Gives Update

Oct 25, 2016, Posted in Collaborations, Latest News, NF1, Science, Synodos, Video

Last year, the Children's Tumor Foundation announced Synodos for NF1, a unique consortium bringing together a multidisciplinary team of scientists, clinicians, technicians, patients and other experts from world-class labs at academic and medical centers. These scientists have pledged to work together and share unpublished information, datasets, and results, thereby accelerating the drug development process.

Synodos For Schwannomatosis

May 4, 2016, Posted in Collaborations, Schwannomatosis, Science, Synodos


New York, NY, May 4, 2016.  The Children’s Tumor Foundation is proud to launch a new consortium for schwannomatosis, the rarest and least studied form of neurofibromatosis. Based on the Synodos model for NF1 and NF2, the ‘Synodos for Schwannomatosis’ is a multi-tiered project that will bring together basic, translational, and clinical researchers towards the end goal of developing effective treatments for schwannomatosis.

Fellowship in Computational Modeling of Neurofibromatosis / Schwannomatosis

Seattle, Washington Sage Bionetworks and the Children’s Tumor Foundation (CTF) are recruiting qualified candidates for a fully-funded 2-year postdoctoral training program. We are seeking individuals with a research or clinical background in neurofibromatosis (NF) or NF-related diseases, who are looking to broaden his/her skill-set by learning and applying computational approaches to cancer. Successful candidates will spend their time at Sage Bionetworks in Seattle, working side-by-side with data scientists, computational biologists, and clinicians.

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