The Volunteer Leadership Council (VLC) Patient Engagement Task Force is administering a survey to gather information and resources that are used by patients and families living with NF. Question topics include support, medical, community, financial and education resources. The information collected will be used to better serve others living with NF through sharing resources, developing guides, and as a reference for developing future programs. By taking the time to participate in this survey, you can make a difference in the lives of other families and individuals affected by NF.
Click here to begin the survey.
We thank you for your input!
