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Blog entries
Blog entries
  • CDMRP Grant Funding Announced

    We ask our supporters through the spring and summer to join our advocacy program to lobby Congress for continued funding of NF research through the Congressionally Directed Medical Research Program-NF Research Program.


    The results of this work can be seen here:  http://cdmrp.army.mil/funding/nfrp.shtml


    The CDRMP recently announced the grants available for FY2012.  These funds were made available through the work of the NF community last year.  Our advocacy campaig...

  • Justin Bell and Racing4Research Win Big in Florida

    Justin Bell Sweeps Pirelli World Challenge GTS Races in St. Petersburg for Children’s Tumor Foundation / Racing4Research and eBay Motors and Mobile

    Late Pass Gives Bell Second Weekend Win and First Career Sweep in the No. 50 Tiger Racing Ford Mustang Boss 302S



    ST. PETERSBURG, Florida (March 25, 2012) – Justin Bell scored the first race-weekend sweep in his 25-year motorsports career in the season-opening event of the Pirelli World Challenge at the Grand Pri...

  • CTF to 'Fuel The Cure' in NASCAR with Quicken Loans and Stewart-Haas Racing

     


    It's not often you really get to surprise a group of people... Tuesday, March 13th was one of those days.  I was in Charlotte, North Carolina for the official announcement of our NASCAR program with Quicken Loans and Stewart-Haas Racing.  We were fortunate that the team had arranged for the big announcement to be made on SPEED's NASCAR Race Hub television show.  I invited a few of the local NF Hero families to join us at the studio where they could meet the...

Videos from 2011 - NF Conference

 
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Video Updates
(keep an eye out for more to come)

Dr. Roger Packer speaks about the pre-clinical consortium and how patients should handle surgery follow up.
Discusses the Schwannomatosis Database, WHY was it created, it's purpose, and how it will benfit NF patients.
Dr. Clapp discusses more about the clinical trial and the genesis of neurofibromas.
Dr. Stevenson shares his work in bone abnormalities, and the relationship between CTF and research progress.
Dr. Clapp talks about the pre-clinical consortium and the Phase II clinical trials of Gleevac at Indiana University along with the key role of CKIT pathway in the genesis of plexiform neurofibromas.
PATIENT SPECIAL - Jill Beck gives a heart moving account of what life is like living with someone suffering from schwannomatosis.