RUN FOR A REASON - Stories of Triumph
Preston McFarland Preston has NF1 which has manifested itself in many ways. He has an optic nerve glioma, a tumor on the optic nerve which is classified as a cancerous brain tumor. The tumor is currently stable, and Preston has annual MRI’s to make sure it doesn’t grow. If growth or change occurs, the treatment is chemotherapy. He also has a plexiform neurofibroma. This is a tumor of the nerve sheath (the protective covering on nerves) that has the potential to cause ser... READMORE |
Savannah Grace “Gigi” Kast Gigi will do just about anything for a bag of Skittles. She loves sugary treats. She likes things that are pink and she enjoys playing in dress up clothes. But Gigi's diagnosis of Neurofibromatosis (NF1) brings many challenges to the life of a 7-year-old. Gigi has endured the growing number of café-au-lait spots, macules and two broken tibias. She sports bifocals, pink of course, for estropia and cross-eyedness. She has iris Lisch nodules, small benign tumors, on her eye. An opt... READMORE |
Upcoming Events
- 09.05.2010 - 09.05.2010 Virginia Beach Rock 'n' Roll Half Marathon
- 09.19.2010 - 09.19.2010 Philadelphia Rock'N'Roll Half Marathon
- 10.03.2010 - 10.03.2010 San Jose Rock'N'Roll Half Marathon
- 10.03.2010 - 10.03.2010 Twin Cities Marathon, 10Miler, 10K & 5K
- 10.09.2010 - 10.09.2010 Hartford Marathon, Half Marathon, Relay & 5K
- 10.10.2010 - 10.10.2010 Portland Marathon, Half Marathon and 5 Miler
- 10.10.2010 - 10.10.2010 Bank of America Chicago Marathon
- 10.17.2010 - 10.17.2010 Denver Rock 'n' Roll Marathon and Half Marathon
Latest NFE Blog Posts
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Weekend Pacesetter (Sept. 3 – Sept. 6, 2010)
3 Sep 2010 | 3:13 pmGOODBYE SUMMER Celebrate the last long weekend of summer vacation at the Rock ‘n’ Roll Virginia Beach Half Marathon with[…]
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A Dad. A Daughter. A Journey for a Cure.
31 Aug 2010 | 3:31 pmThe following post is written by NF Endurance Team member Darren Smith who rode on Aug. 28, 2010 in the[…]
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Weekend Pacesetter (Aug. 27 – Aug. 29, 2010)
27 Aug 2010 | 10:48 amHOTTT Steve Kendra has driven out to Texas for Hotter’n Hell, the largest sanctioned bike ride in the country, based[…]
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Finding Magic in Running for NFE
25 Aug 2010 | 10:39 amBy: Chris Leano Magic happens in these kind of runs. Last year at the San Francisco Marathon it was meeting[…]
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Want to Run the ING NYC Marathon? NFE Has Only Eight More Spots!
23 Aug 2010 | 11:48 amOur top five reasons to run NYC with NFE: 5. It’s a premier race. Where else can you run in[…]