RUN FOR A REASON - Stories of Triumph

Preston McFarland

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Preston has NF1 which has manifested itself in many ways. He has an optic nerve glioma, a tumor on the optic nerve which is classified as a cancerous brain tumor. The tumor is currently stable, and Preston has annual MRI’s to make sure it doesn’t grow. If growth or change occurs, the treatment is chemotherapy. He also has a plexiform neurofibroma. This is a tumor of the nerve sheath (the protective covering on nerves) that has the potential to cause ser...

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Savannah Grace “Gigi” Kast

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Gigi will do just about anything for a bag of Skittles. She loves sugary treats. She likes things that are pink and she enjoys playing in dress up clothes. But Gigi's diagnosis of Neurofibromatosis (NF1) brings many challenges to the life of a 7-year-old. Gigi has endured the growing number of café-au-lait spots, macules and two broken tibias. She sports bifocals, pink of course, for estropia and cross-eyedness. She has iris Lisch nodules, small benign tumors, on her eye. An opt...

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