For more information or questions about the NFCN, contact:
HEATHER RADTKE, MS, CGC
NF Clinic and Symposium Coordinator
The Neurofibromatosis Clinic Network (NFCN) was established by the Children’s Tumor Foundation (CTF) in 2007 to standardize and raise the level of neurofibromatosis (NF) clinical care nationally and integrate research into clinical care practices. The NFCN is the first nationwide network dedicated to improving clinical care and establishing best practices for treating those living with NF. The NF Clinic Network recognizes clinics that provide comprehensive medical care to individuals with NF, foster patient education, and encourage participation in clinical research trials and the NF registry. There are currently 50 NF Clinics in the NFCN that have demonstrated their ability to provide specialty care to NF patients and their families.
All NF care providers are invited to submit an application for affiliate clinic status. Applications can be requested from Heather Radtke at firstname.lastname@example.org. Applications are reviewed by the CTF Clinical Care Advisory Board and accepted or declined based on several factors including NF expertise, patient volume, multidisciplinary approach, research support and connections with local CTF volunteers. Once a clinic is accepted as a recognized NFCN site, the clinic submits an annual report at the end of each calendar year. At that time, clinics may apply for annual NFCN clinic stipends from the Children's Tumor Foundation.