Johns Hopkins All Children’s Hospital

Neurocutaneous Disorders Clinic
601 5th Street South, Suite 302
St. Petersburg, FL 33701

NF Clinic Network?:Yes
Contact Information:

Scheduling and other inquiries: 727-767-3675 or

Clinic Director's Name:Stacie Stapleton, MD
Clinic Coordinator Name:Sonja Steinbrueck, RN
Number of NF1 Patients Seen in Last Year:46
Number of NF2 Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses):49
Patient Age Breakdown:98% <18 yrs
2% 18 yrs or older
Does the clinic see adults for routine NF-related care?:No
Does the clinic enroll patients for onsite research?:No
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Pain, Psychosocial, Surgery