Boston Children’s Hospital

Multidisciplinary Neurofibromatosis Program
300 Longwood Avenue, Fegan 4
Boston, MA 02115

NF Clinic Network?:Yes
Contact Information:

Scheduling and other inquiries: 617-355-6394 or

Clinic Director's Name:David Miller, MD, PhD, FAAP, FACMG
Clinic Coordinator Name:Caroline McGowan, MS, CGC, LGC
Number of NF1 Patients Seen in Last Year:423
Number of NF2 Patients Seen in Last Year:6
Total number of patients seen last year (includes other related diagnoses):615
Patient Age Breakdown:90% <18 yrs
10% 18 yrs or older
Does the clinic see adults for routine NF-related care?:No
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2
Ages: Pediatric
Areas of Focus: Cutaneous Neurofibromas, Dermatology, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF