Ann and Robert H. Lurie Children’s Hospital of Chicago

Neurofibromatosis Clinic
225 East Chicago Avenue, Box #59
Chicago, IL 60611

NF Clinic Network?:Yes
Contact Information:

Scheduling: 312 227-6120

Other inquiries: 312-227-6769

Clinic Director's Name:Joel Charrow, MD and Robert Listernick, MD
NF Clinic Days:Weekly
Clinic Coordinator Name:Allison Goetsch, MS, CGC
Number of NF1 Patients Seen in Last Year:227
Number of NF2 Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses):271
Patient Age Breakdown:97% <18 yrs
3% 18 yrs or older
Does the clinic see adults for routine NF-related care?:No
Does the clinic enroll patients for onsite research?:No
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2
Ages: Pediatric
Areas of Focus: Cutaneous Neurofibromas, Genetics, Gliomas - Brain Tumors, Ophthalmology - Optic Glioma, Plexiform Neurofibromas