Children’s Hospital Los Angeles

Comprehensive Neurofibromatosis Clinic
4650 Sunset Blvd MS #82
Los Angeles, CA 90027

NF Clinic Network?:Yes
NF Consortium Site?Yes - click here for more info
Contact Information:

Scheduling and other inquiries: 323-361-2471 (Neurology) or 323-361-2178 (Medical Genetics)

Clinic Director's Name:Tena Rosser, MD; Linda Randolph, MD
NF Clinic Days:Weekly: Tuesdays (Neurology); varied (Medical Genetics)
Clinic Coordinator Name:Jaime Gruen, RN, BSN
Additional Details:

Coordinated appointments can be arranged but often depend on being able to obtain insurance authorization for multiple specialists on the same day. We have many international and out of state patients who seek multi-disciplinary NF care at CHLA and we do our best to coordinate appointments between multiple departments to facilitate their visit.

Number of NF1 Patients Seen in Last Year:356
Number of NF2 Patients Seen in Last Year:4
Total number of patients seen last year (includes other related diagnoses):360
Patient Age Breakdown:83% <18 yrs
27% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

Specialties:
NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial