Children’s Hospitals and Clinics of Minnesota

Neurocutaneous Syndromes Clinic
2530 Chicago Ave South
Minneapolis, MN 55404

NF Clinic Network?:Yes
Contact Information:

Scheduling and other inquiries: 612-813-7240

Clinic Director's Name:Marcelo Vargas, MD and Elizabeth Siqveland, APRN-CNP
Clinic Coordinator Name:Dinel Pond, MS, CGC
Number of NF1 Patients Seen in Last Year:102
Number of NF2 Patients Seen in Last Year:1
Total number of patients seen last year (includes other related diagnoses):170
Patient Age Breakdown:95% <18 yrs
5% 18 yrs or older
Does the clinic see adults for routine NF-related care?:No
Does the clinic enroll patients for onsite research?:No
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2
Ages: Pediatric
Areas of Focus: Cutaneous Neurofibromas, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF