Children’s National Health System

Jennifer and Daniel Gilbert NF Institute
111 Michigan Avenue, NW
Washington, DC 20010
Click to Visit Clinic Website

NF Clinic Network?:Yes
Contact Information:

Scheduling: 202-476-3611

Other inquiries: 202-476-2120

Clinic Director's Name:Miriam Bornhorst, MD
NF Clinic Days:Weekly Mondays and 1st, 3rd & 4th Tuesdays and one Thursday a month
Clinic Coordinator Name:Peter Shibuya, PNP
Number of NF1 Patients Seen in Last Year:319
Number of NF2 Patients Seen in Last Year:3
Number of Schwannomatosis Patients Seen in Last Year:3
Total number of patients seen last year (includes other related diagnoses):325
Patient Age Breakdown:92% <18 yrs
8% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dermatology, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF