Cincinnati Children’s Hospital Medical Center

The Cincinnati Neurofibromatosis Clinic
3333 Burnet Ave, Division of Human Genetics, ML 4006
Cincinnati, OH 45229
Click to Visit Clinic Website

NF Clinic Network?:Yes
NF Consortium Site?Yes - click here for more info
Contact Information:

Scheduling: 513-636-1861 or jody.poppe@cchmc.org 

Other Inquiries: 513-636-8826 or geraldine.kelly-mancuso@cchmc.org

Clinic Director's Name:Elizabeth Schorry, MD and Carlos Prada, MD
Clinic Coordinator Name:Geri Kelly, BSN, RN, CPN
Number of NF1 Patients Seen in Last Year:317
Number of NF2 Patients Seen in Last Year:17
Number of Schwannomatosis Patients Seen in Last Year:5
Total number of patients seen last year (includes other related diagnoses):420
Patient Age Breakdown:77% <18 yrs
23% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

Specialties:
NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dermatology, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF