Florida Hospital for Children

Neurofibromatosis Clinic
601 E. Rollins Street
Orlando, FL 32803

NF Clinic Network?:Yes
Contact Information:

Scheduling and other inquiries: 407-303-7945 or kara.colson@flhosp.org

Clinic Director's Name:Fouad Hajjar, MD
Clinic Coordinator Name:Kara Colson, RN
Number of NF1 Patients Seen in Last Year:199
Number of NF2 Patients Seen in Last Year:3
Total number of patients seen last year (includes other related diagnoses):202
Patient Age Breakdown:80% <18 yrs
20% 18 yrs or older
Does the clinic see adults for routine NF-related care?:Yes
Does the clinic enroll patients for onsite research?:No
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dermatology, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF