Johns Hopkins University

Comprehensive Neurofibromatosis Center
600 N. Wolfe Street; Phipps 117
Baltimore, MD 21287
Click to Visit Clinic Website

NF Clinic Network?:Yes
NF Consortium Site?Yes - click here for more info
Contact Information:

Scheduling and other inquiries: 410-502-6732

Clinic Director's Name:Jaishri Blakeley, MD
NF Clinic Days:Comprehensive Clinic with surgery is held one Friday a month; Comprehensive Clinic without surgery is held one Monday a month. Follow-up Clinic is held weekly on Wednesday
Clinic Coordinator Name:Shannon Langmead, CRNP
Number of NF1 Patients Seen in Last Year:300
Number of NF2 Patients Seen in Last Year:100
Number of Schwannomatosis Patients Seen in Last Year:40
Total number of patients seen last year (includes other related diagnoses):440
Patient Age Breakdown:35% <18 yrs
65% 18 yrs or older
Does the clinic enroll patients for onsite research?:Yes
Does the clinic inform patients about outside research?:Yes

NF Type: NF1, NF2, Schwannomatosis
Ages: Pediatric, Adult
Areas of Focus: Cutaneous Neurofibromas, Dermatology, Dystrophic Scoliosis, ENT, Genetics, Gliomas - Brain Tumors, Learning Disabilities - ADHD, Neurology, Ophthalmology - Optic Glioma, Other, Other Orthopedic - Bone issues, Pain, Plexiform Neurofibromas, Pseudarthrosis, Psychosocial, Surgery, Vasculopathies of NF